Media contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC—The National Consumers League (NCL), the nation’s pioneering consumer advocacy organization, expresses concern about the Trump Administration’s Notice of Benefit and Payment Parameters Rule for 2021.
May 19, 2020
Theresa Kong Kee, Gloryana Akapo named 2020 LifeSmarts State Coordinators of the Year
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC—LifeSmarts, a national teen consumer literacy and scholarship program, has named two Hawaii government officials its 2020 Coordinators of the Year: Theresa Kong Kee, Investor Education Specialist, and Gloryana Akapo, Securities Multi-Media Education Specialist with the Office of the Securities Commissioner, both with the Hawaii Department of Commerce and Consumer Affairs. Kong Kee has served as Hawaii State LifeSmarts Coordinator for 7 years; Akapo joined her as co-coordinator two years ago.
LifeSmarts, a consumer education competition that challenges teens in grades 9-12 about personal finance, health and safety, the environment, technology, and consumer rights and responsibilities, is a program of the National Consumers League (NCL). LifeSmarts is coordinated by NCL at the national level and by volunteers who serve as State Coordinators across the country.
“Working together, Theresa and Gloryana run a very successful and competitive LifeSmarts program for students and educators in Hawaii,” said LifeSmarts Program Director Lisa Hertzberg. “They have developed a state LifeSmarts website that includes many resources for educators. They actively promote LifeSmarts through social media to provide resources to their coaches, and they have continued to be especially active during the pandemic.”
LifeSmarts State Coordinators implement the national consumer education program at the local level, bringing to bear their knowledge of best practices for students and educators in their state. State Coordinators promote the program, advise educators, and run online and live state competitions to advance consumer education for the students in their states.
Staff within the Office of the Securities Commissioner in the Hawaii Department of Commerce and Consumer Affairs has served in the State Coordinator role since 2013.
“Theresa and Gloryana work so hard for their state, and it shows; Hawaii’s LifeSmarts program is truly exceptional, when it comes to administration, partnerships, and—most importantly—student participation and success,” said Hertzberg. “The Hawaii LifeSmarts program is robust, and student teams have done very well at the national level. Hawaii is also home to the second largest Junior Varsity (middle school) program in the nation. We are thrilled to honor them this year and congratulate them for a job very well done.”
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About LifeSmarts and the National Consumers League
LifeSmarts is a program of the National Consumers League. State coordinators run the programs on a volunteer basis. For more information, visit: www.lifesmarts.org, email lifesmarts@nclnet.org or call the National Consumers League’s communications department at (202) 835-3323.
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
May 12, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC–Leaders in the U.S. House of Representatives today unveiled a new COVID-19 stimulus bill, the HEROES Act, that includes a new $50 per month subsidy ($75 per month for Tribal lands) to support access for low-income Americans to broadband. At time when the effects of the Digital Divide have never been more apparent, NCL is proud to support this effort.
The following statement is attributable to National Consumers League Executive Director Sally Greenberg:
“We have long known that affordability is a significant barrier to millions of American families who lack access to broadband. The COVID-19 pandemic, has highlighted as never before the societal costs of cutting off millions of families from the Internet. The inability to connect to distance learning, support networks and online government resources will make recovering from this pandemic even tougher for consumers who lack affordable access to broadband. It is for this reason that NCL strongly supports the proposed Emergency Broadband Connectivity Fund subsidy.”
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
May 8, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC –Washington, DC / Harrisburg, PA—Next Monday, May 11, the National Consumers League (NCL), America’s pioneering consumer and worker advocacy organization, will host a virtual fireside chat with Pennsylvania Attorney General Josh Shapiro and a panel of consumer protection experts on the growing threat of scams linked to the COVID-19 pandemic. The consumer watchdog organization aims to raise awareness in Pennsylvania about the risk of COVID-19 related fraud and arm consumers with information they can use to spot and avoid these scams.
Since the pandemic began, NCL, which operates the website Fraud.org, has seen an uptick in complaints about a variety of scams preying on increasingly vulnerable, financially strapped, and fearful consumers. Scammers running phishing schemes, stimulus check fraud, and even pet adoption scams have all been working overtime to use the COVID-19 pandemic as a way to defraud consumers. The experts at NCL forecast these scams will continue to increase and evolve and are eager to work with AG Shapiro to get the word out about how Pennsylvanians can protect themselves.
WHAT
Virtual “fireside chat” featuring Pennsylvania AG Josh Shapiro and NCL, followed by a panel discussion on resources and tips to avoid COVID-19 fraud and scams
WHEN
Monday, May 11, 2020
11:00 AM – 11:45 AM EDT
WHO
Pennsylvania Attorney General Josh Shapiro
John Breyault, Vice President, National Consumers League
Lorrie Cranor, Professor, Carnegie Mellon University
Mary Bach, Chair, AARP Pennsylvania Consumer Issues Task Force
Andrew Goode, Esq., Vice President, Metro Philadelphia Better Business Bureau
HOW TO WATCH
YouTube Live Link will be provided following registration via Eventbrite
*** Members of the media are welcome to attend but must RSVP to Carol McKay, National Consumers League, carolm@nclnet.org. If you are unable to attend, a recording of the interview and panel can be provided upon request after the event concludes ***
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
May 5, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC –The National Consumers League (NCL) last week sent a letter to the CEOs of Cigna, Aetna, and UnitedHealth Group, urging them to enter into productive negotiations with air medical service providers to ensure coverage of emergency air medical transportation. The ask comes as the COVID-19 pandemic spreads across the country, making air medical services even more essential, particularly in rural America.
In its letter, NCL notes that it is increasingly concerned about emergency air medical access during this crisis, and that it believes this life-saving care should be covered by every insurance plan. NCL asks that insurers review the robustness of their coverage policies and immediately to enter into network negotiations with air medical providers so that this critical service is covered, and patients are never left with a bill they cannot pay.
Text of the letter, signed by NCL Executive Director Sally Green is below:
Dear Mr. Wichmann, Mr. Cordani, and Ms. Lynch:
The National Consumers League has long advocated for health care as a right and argued for fair treatment for all stakeholders across the health care spectrum – patients, physicians, hospitals, health plans, and health care providers. Our mission is particularly acute during the global COVID-19 pandemic, when medical professionals are on the frontlines fighting for our health and safety, stricken patients need life-saving care, and nearly everyone is focused on their health and that of their loved ones.
In this vein, we are increasingly concerned about access to emergency medical care, especially in rural America, as the virus indiscriminately makes its way across the country. When minutes count, Americans who fall victim to COVID-19 must be assured that they can get to the nearest, most appropriate medical facility as quickly as possible. As COVID-19 strains hospital capacity and critical medical equipment like ventilators become attenuated, emergency air medical transports between facilities are often the only way for patients to get the care they need.
According to the Centers for Disease Control and Prevention (CDC), 85 million Americans can only reach a Level 1 or Level 2 trauma center within one hour if they are flown by an air medical helicopter. The effects of this access problem are staggering, and even more pronounced as we wrestle with the COVID-19 crisis. For many Americans, air medical ambulances are a vital link to timely, life-saving care.
We believe that such life-saving care should be covered by insurance. Patients pay their monthly premiums – and copays and deductibles – so they are not bankrupted should the worst befall them or their loved ones. Unfortunately, there have been far too many stories of people who were transported by air ambulance because it was ordered by a first responder or doctor, only to be told later by their insurance company that they would have to shoulder the bulk of the cost. This should not be the case anytime, but especially now as our nation wrestles with a pandemic.
This explains why we at the National Consumers League are writing to you for your input and thoughts. We believe that emergency air medical transportation should be included in every health coverage plan. We think that insurance companies and air medical providers must work together to bring these services in-network, so patients are not left footing a bill they can never hope to pay. Adequate network agreements are imperative so that patients are not told – after the fact – that they were transported by an air ambulance that was not in-network. When an emergency happens, or worse yet, a pandemic strikes, patients are not choosing whether to take an air ambulance, let alone choosing a particular provider. Similarly, coverage denials based on “medical necessity” should be the exception, not the rule, in light of the fact that patients are not a part of the decision-making process.
We ask that your companies immediately take a comprehensive look at your coverage policies for air medical services and the robustness of your provider networks. We urge you and the air ambulance community to enter into network negotiations, take patients out of the middle, find a middle ground on reimbursement that fairly compensates both sides, and ensure rural communities have access to air ambulance transports. Refusing to fairly negotiate is simply not an option in light of the current crisis. Entering into productive negotiations immediately will ensure that patients across the country have access to the medical care they need and that they are simultaneously protected from balance bills.
Thank you for your attention to our concerns.
Sincerely,
Sally Greenberg
Executive Director
National Consumers League
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
May 4, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC–The National Consumers League (NCL) has long recommended an annual, in-person eye exam as part of consumers’ annual health and wellness routines. An eye examination with an eye doctor ensures not only correct eyeglass and contact lens prescriptions, but also the opportunity for important preventive care as the eyes are a window into our overall health. An eye doctor, whether a primary eye care doctor of optometry or an ophthalmologist, can diagnose potentially hundreds of conditions during an exam, including diabetes, cancer, and macular degeneration. Through an eye exam, these doctors can catch an illness or disease early and treat it right away, making this care a critical part of our preventive care toolbox.
But now with COVID-19 keeping many of us at home, companies claiming to offer at-home vision tests are ramping up their marketing, despite the fact that there is no U.S. Food and Drug Administration- (FDA) approved at-home device that people can use to self-conduct a vision assessment, let alone a full eye examination. These devices have not been proven to even provide an accurate vision prescription. Consumers need to be wary of products that mistakenly claim that their at-home devices can provide an eye exam or a vision prescription and should instead consult their eye doctors who are available to help provide safe solutions.
NCL applauds state attorneys general for taking action and the media for publishing articles about the dubious effectiveness and potential dangers that at-home vision tests or devices present. It’s been important to tell consumers to be aware of false marketing promises.
As states begin to reopen health care access, eye doctors across the country are beginning to safely provide routine eye health examinations once again. Patients looking to schedule their annual eye examinations or update their prescriptions should contact their eye doctors, who are employing protocols to protect everyone’s health during this public health emergency.
Although the COVID-19 pandemic is bringing out the best in many companies across our country, there are those few who are taking this opportunity to mislead and misinform the public. NCL wants to remind consumers to be aware and understand that there’s no substitute for an annual, in-person comprehensive eye exam or for the doctor-patient relationship that’s at the heart of healthy outcomes, especially when it concerns our precious eye health and vision. When it comes to your eyes, you don’t fool around!
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
April 28, 2020
Student competitors best in states in national consumer literacy education / scholarship program
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC—The National Consumers League (NCL) has announced the 2020 Champion student teams that took first place in their states’ LifeSmarts 2019-2020 competitions and have earned a place at the next National LifeSmarts Championship. LifeSmarts, a consumer education competition that challenges teens in grades 9-12 about personal finance, health and safety, the environment, technology, and consumer rights and responsibilities, is a 26-year-old program sponsored by NCL.
Due to the coronavirus pandemic, the 2020 National LifeSmarts Championship was cancelled, but NCL is celebrating the teams of students who came in first in their states and would have competed for the 2020 national title. Due to the students’ success this year, all state champion and special Wild Card teams have qualified to compete at the 2021 National LifeSmarts Championship, which will be held in Cincinnati April 17-20, 2021.
“We are so proud of these students from across the country, who beat out thousands of other teens in order to take their state titles,” said LifeSmarts Program Director Lisa Hertzberg. “We look forward to coming together next spring to finish out the competition and determine the 2020 National Champion team.”
LifeSmarts is an education and scholarship program run by the Washington, DC-based National Consumers League (NCL), the nation’s oldest consumer advocacy organization. It competitively tests high school students’ consumer and personal finance knowledge. LifeSmarts is available in all 50 states, the District of Columbia, and in partnership programs with student leadership programs FBLA, 4-H, and FCCLA.
Long-time Indiana-based coach Diane Slaven, an instructor from Franklin County High School, was named the 2020 LifeSmarts Coach of the Year. In the words of the students who nominated Slaven:
“Mrs. Slaven sees LifeSmarts as an organization that teaches students things that they will need in their lives, that they aren’t necessarily exposed to in school. That is the reason why she is so invested and has given back to LifeSmarts as a coach for so many years. Mrs. Slaven is dedicated to the success of each student, not only in LifeSmarts but in our lives as well. Mrs. Slaven has led many teams to National Competitions throughout the years and has not failed to highly motivate and prepare each team. I think this says a lot about how caring and dedicated she is. She juggles the duties of LifeSmarts along with being department head of the business department. This year Mrs. Slaven is retiring, and is so deserving of this great honor due to everything she has given to us, and LifeSmarts throughout the years.”
In the 26 years that LifeSmarts has been educating high school and middle school teens on consumer issues, it has grown dramatically, with more than 3 million consumer questions answered at LifeSmarts.org in the online competition during the 2019-2020 program year.
“NCL’s LifeSmarts program is allowing us to rear a generation of consumer-savvy teenagers who often outsmart their parents on issues related to avoiding fraud, credit and debt, and complicated healthcare decisions,” said NCL Executive Director Sally Greenberg.
To learn more about the program, contact NCL’s Lisa Hertzberg at lisah@nclnet.org.
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About LifeSmarts and the National Consumers League
LifeSmarts is a program of the National Consumers League. State coordinators run the programs on a volunteer basis. For more information, visit: www.lifesmarts.org, email lifesmarts@nclnet.org or call the National Consumers League’s communications department at (202) 835-3323.
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
April 23, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC –The National Consumers League (NCL), the nation’s oldest consumer and worker advocacy organization, is demanding that the federal government put its support behind massive COVID-19 test production and, as quickly as is feasible, put in place a testing protocol for every citizen so that America can get back to work.
“There are calls across the country to reopen businesses; we understand and share that frustration,” said NCL Executive Director Sally Greenberg. “However, as we are currently not allowing tests for people who are asymptomatic—and because 25 percent of people who carry the virus don’t show symptoms—doing so would be reckless. It’s a Catch-22. Until everyone is tested, we can’t send symptom-free people back into the world. So the government’s first order of business must include giving America’s labs and drug companies the goal and the means to produce rapid-response testing for every American within the next month.”
NCL has laid out the following recommendations:
Meet the need for testing in clinics and doctors’ offices
The Food and Drug Administration (FDA) must oversee the process of improving techniques and reliable, accurate test production. Many labs are working on this, addressing the immediate need for care providers to have enough, high-quality tests.
“The Senate has voted to include $25 billion for the clinical labs that make the tests in the next COVID legislative package” said Greenberg. “That is welcome news because states cannot do this alone; they end up competing against each other for tests and other supplies.”
As Maryland Governor Larry Hogan (R-MD) said this week, “Every governor in America has been pushing and fighting and clawing to get more tests, not only from the federal government, but from every private lab in America and from across the world. It’s nowhere where it needs to be.” Virginia Governor Ralph Northam (D-VA) noted that the President’s claims that the country has enough tests for the virus are “delusional.”
Clearly, quality is paramount. The serious stumbles at such premier institutions as the Centers for Disease Control and Prevention (CDC) cannot continue. “The federal government must continue to support and expand the production of quality tests, and at capacity to meet the current needs of care providers,” said Greenberg.
Universal testing
As stated above, though, in order to get people back out to restart the economy, we cannot only test those who show serious symptoms and go to care providers to get tested. We must develop tests that can be self-administered, and in adequate numbers so that each person can test for COVID before leaving the home on any given day.
“Millions of workers have to take drug tests every day to keep their jobs; those tests are rapid-response. Consumers can buy rapid response tests for strep throat and pregnancy,” said Greenberg. “Those are approved FDA products that are tested for accuracy and safety. We must get to a rapid response COVID-19 home test as soon as possible.”
In order to determine who has COVID-19 and should be quarantined, every American must be able to test for the virus on a regular basis. Those who test positive, with or without symptoms, go into quarantine for 14 days, as do the people in that individual’s household. Those who test negative are cleared to go out in the world to get the trains running again. This would call for hundreds of millions of tests to enable on-going testing, as it is the only path forward at this time.
And the technology is not “pie-in-the-sky.” The FDA has already approved one home-test kit, though it requires lab analysis. And BARDA/HHS has funded another company to develop “a rapid antigen and antibody diagnostic to identify current or past SARS-CoV-2 infections in 60 seconds.” We are on the road.
Antibody testing
While it’s not clear how long antibodies create immunity, there is a belief that they at least do so for the short-term. So the next step would be to provide serology testing for people who test negative for COVID-19, using only tests approved by the FDA to ensure quality and accuracy. To date, the FDA has approved only four tests of the many available, but this is an important start.
Those who are determined to have a sufficient level of antibodies should be cleared to go back to work, while still wearing masks and gloves until science has confirmed decisively that antibodies create immunity. If the individuals don’t have antibodies, they would be advised to stay home, but could be cleared to go back to work so long as they test every day before heading out.
Contact tracing
Everyone who tests positive reaches out to everyone they’ve had contact with and those people test for COVID-19. Anyone then testing positive goes into quarantine, and the process repeats.
Use technology to self-surveil
Finally, we need a system for uploading test results each day to our phones – like the bar codes we use to board an airplane – or to carry evidence that we have taken the test, have antibodies to COVID-19, and can work or otherwise go out. Enforcement would be a new challenge, given our commitment to civil liberties, but one that we can certainly work out.
Longer term: Vaccinate
In a year or more, when a vaccine arrives, 95 percent of Americans will need to be vaccinated to achieve herd immunity and widespread protection.
“Our nation has the know-how and manufacturing infrastructure to produce the millions of tests needed to determine whether someone has the virus,” said Greenberg. “But due to lack of leadership at the top, our testing capacity is still, several months after the outbreak, extremely limited. To date only 3.3 million people have been tested, according to the COVID Tracking Project. That’s about 1 percent of the population. That is simply not enough.”
NCL is demanding that the Federal government respond to the current national Coronavirus emergency as President Roosevelt responded to World War II, and challenge Americans to “harness the efficient machinery of America’s manufacturers” to fight the pandemic.
“We need that call to action now, to challenge America’s labs and drug companies with the goal of producing testing for every American within the next month. Federal health care agencies including CDC, National Institutes of Health (NIH), and FDA should be their partners, and this should be a shared cost,” said Greenberg. “In the midst of the worst unemployment numbers ever seen in American history, and with millions of businesses having their existence threatened, we need federal leadership, expertise, and financial support to make this happen, and we need it now.”
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
April 23, 2020
Media contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
NEW YORK–Chipotle workers on Wednesday welcomed the news that the Department of Justice imposed on the company the largest criminal fine ever for a food safety case but said the company needs to make more reforms to address the core issues that are driving worker abuses and violations of food safety protocols.
As the COVID-19 pandemic has sickened many people across the US, essential workers like those at Chipotle and other chains have risked their health and their lives to provide food to their communities. These workers say that long-standing issues at Chipotle are putting them at risk.
In February, the National Consumers League and SEIU 32BJ released a report following an in-depth investigation with dozens of Chipotle workers throughout New York City documenting widespread worker abuses that directly affect customer safety.
“I am glad that the Justice Department has held Chipotle accountable for their actions that have put people at risk,” said Luis Torres, a worker at a Chipotle store in Manhattan. “But even as recent as the beginning of March we had to walk off the job together to fight back against managers pressuring crewmembers to work sick while the Coronavirus crisis was escalating. We’re pressured to make the food faster and aren’t always allowed to take the proper safety precautions. We are speaking out because we just want to stay safe and keep our customers safe.”
The government’s announcement resonates with the report’s findings, including managers pressuring workers to work sick and violations of food safety protocol and Chipotle’s own policies. For example, many workers reported manager pressure not to wash their hands during rush periods so as not to slow the line.
The report also called attention to the ineffective food safety audits, which now must be improved per the deferred prosecution agreement. The food safety audits and Chipotle’s paid sick day policy were part of a set of reforms put in place in 2016 to win back the trust of Chipotle customers following earlier illness outbreaks at Chipotle but according to workers, audits only happen quarterly, meaning that once a store is audited, the manager knows they won’t get audited again until the next quarter.
“We applaud the work of US Attorney’s Office for working with the FDA and for holding Chipotle accountable with a substantial fine,” said NCL Executive Director Sally Greenberg. “This should be a wake-up call for Chipotle. For years, its management incentive practices have put profits first, endangering the safety and health of customers and workers repeatedly. Now more than ever when food safety is so critical, Chipotle needs a massive overhaul of its management and business practices to put consumer and worker safety first.”
New York City workers have also reported retaliation from managers if they use their sick days.
“Courageous Chipotle workers have stood up to demand the company live up to its responsibilities to protect the health and safety of customers and employees,” said 32BJ President Kyle Bragg. “The COVID-19 pandemic has made this more important than ever. We are proud to support workers in their fight for food safety, stable jobs with lower turnover and respect for their essential work in the community.”
Workers, 32BJ and the NCL are demanding Chipotle fundamentally reform their policies to promote worker and consumer safety and ensure that workers have a real voice on the job through their own organization. When workers have the power to protect themselves, the public is better protected as well.
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About 32BJ SEIU
With 175,000 members in 11 states, including 85,000 in New York, 32BJ SEIU is the largest property service workers union in the country.
About the National Consumers League (NCL)
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
April 10, 2020
Contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832
Washington, DC – April 10, 2020 – The National Consumers League (NCL), in partnership with 42 patient and provider advocacy, public health, industry, and research groups, has issued joint letters to Vice President Mike Pence, the U.S. Department of Justice (DOJ), U.S. Federal Trade Commission (FTC), U.S. Food and Drug Administration (FDA), and other state and federal leaders calling for swift action to protect consumers against COVID-19 misinformation, scams, and fraud online.
“NCL commends the White House Coronavirus Task Force and other officials for their dedication in responding to the coronavirus crisis,” said NCL Executive Director Sally Greenberg. “The COVID-19 pandemic makes your work against healthcare and financial fraud more important now than ever. However to further flatten the curve and save lives, we urge the Administration to quickly implement increased evidence-based actions and to help protect consumers from predatory attempts to take advantage of our new economy.”
Since the start of the pandemic, criminals launched thousands of COVID-specific global scams and phishing attacks, using the coronavirus crisis to profit at patients’ expense. “Criminals have exploited the fear and confusion caused by the coronavirus for their own personal profits. More must be done to mitigate the health and financial harms experienced by consumers nationwide,” said Greenberg. In the past few weeks alone, more than 100,000 website domain names have been registered containing terms like “covid,” and “corona,” most of which have been found to be outright dangerous. The Federal Trade Commission indicated receipt of nearly 14,000 coronavirus-related complaints totaling fraudulent losses nearly $10 million.
NCL has long called for increased regulation and enforcement against illegal online acts that result in public health and economic harm. The joint letter encourages the Administration to move swiftly to enact and enforce existing no-cost solutions to better protect consumers. Additionally, it calls on the Administration to ground their efforts in science, address systemic internet policy problems and prepare for an ongoing wave of COVID-19 related scams during the economic downturn.
Co-signers of the letters include Alliance for Safe Online Pharmacies, BIO, Coalition for a Safe and Transparent Internet, Consumer Brands Association, Kroll, Lilly, LegitScript, and USP. The full letter can be read here.
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About the National Consumers League
The National Consumers League, founded in 1899, is America’s pioneering consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
The work of the National Consumers League is making a difference in people’s lives across the country. Meet some of the consumers touched by our programs.
Read about NCL’s impact
Paige, 55, a Nashville wife and mother of two, answered an employment ad for secret shoppers. Before sending payment to the scammers, she reached out to NCL.
Read about NCL’s impact
A grease fire flared up in Decklan’s kitchen. As his family scrambled and panicked, fearing that the whole house might erupt in flames, Decklan remained calm. He hurried over to the pantry, grabbed some baking soda, and dumped it on the fire quickly extinguishing the blaze.
Read about NCL’s impact
Cincinnati resident Charles, 45, lost his computer business — and health insurance— during a time of economic downturn. A diabetic, Charles was now unable to afford his medication. He stopped taking it which made him seriously ill and put his life at risk.
Read about NCL’s impact
Jeremy is a fast-food worker who has been employed at a number of Chipotle restaurants in New York City. When he was just 20 years old, he took part in an NCL research project that revealed that management practices within the fast food chain were putting workers—and food safety for customers—at risk.
Read about NCL’s impact
By Sally Greenberg, NCL Executive Director
While the COVID-19 pandemic has led to hardship for all Americans, it is clear that people of color have been disproportionately burdened. Across the health care continuum, addressing this disparity has become part of the broader conversation about the history of systemic racism and the underlying social determinants of health that negatively affect the mental, physical, and economic health of individuals and entire communities.
The pandemic has underscored persistent health disparities, and there is growing recognition that representation in research and clinical trials can have a profound impact on health outcomes. A lack of representation from racially and ethnically diverse groups in research and clinical trials have typically led to gaps in data, missing the opportunity to assess the full impact of various treatments and drugs across a range of populations. The collection and use of real-world research and data to inform the potential use, risks, and benefits of medical products and treatments can ultimately lead to better health outcomes, particularly for those who have been underrepresented in the past.
Existing efforts to improve inclusion
Efforts to expand diversity and representation in medical research are underway in Congress. Policymakers are encouraging the incorporation of Real World Evidence (RWE) in drug development through the recent Cures 2.0 draft legislation released by Reps. Diana Degette (D-CO-1) and Fred Upton (D-MI-6). While the status quo limits us from effectively reaching underserved populations, the proposed legislation would allow studies that include RWE for some drugs after they have been approved. At the heart of this issue is a growing appreciation that the same therapy can affect different populations in different ways, which is why Cures 2.0 supports collecting data that more accurately reflects the unique experiences and needs of patients across diverse populations.
Recognizing the potential for RWE in maternal health
The lack of representative research in the field of maternal health is undeniable, and its implications are staggering. The dismal state of maternal care in the United States reflects how our health care system has failed women of color, including by not adequately studying treatment options to prevent maternal morbidity and mortality. The need for RWE is clear when you consider the persistent disparities in health outcomes that plague minority communities.
Preterm birth and its disproportionate impact on women of color is a stark illustration of the need to make progress on representative research in maternal health. Preterm birth is the second-largest contributor to infant death in America today. Despite the tremendous physical, emotional, and financial toll that preterm birth continues to take on our country — disproportionately so on women and families of color — not enough therapeutic tools currently exist to prevent it.
Today, “17P,” the only FDA-approved treatment to help reduce the likelihood of spontaneous, recurrent preterm birth in the United States is at-risk of being withdrawn from the market in all its forms, including the branded product and five generic versions. Unfortunately there is conflicting evidence from two different clinical trials, one representative of a diverse U.S. population and another studied in a largely white population in Europe. It’s not a straightforward comparison. If 17P is withdrawn, the women most affected by preterm birth, predominantly women of color, would be left without an FDA-approved treatment option.
The FDA is considering the path forward, including additional data collection through leveraging RWE from past patient use. The success of the first (approval) trial for 17P in the impacted communities signals the importance of RWE. Continued access to 17P is, at its core, a matter of health equity. Black women must not yet again be left vulnerable to a system that historically has overlooked them.
