Consumer warning: is your DNA data at risk? 23andMe on the brink of bankruptcy

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829   

Washington, DC – The National Consumers League (NCL) is issuing an urgent warning to consumers regarding the recent bankruptcy filing by 23andMe, the popular genetic information company. While 23andMe claims that consumer data will be protected during the bankruptcy process, there are significant concerns about the future of your personal genetic data and health information.     

“It remains uncertain whether consumer protections and agreements will be upheld within the context of the bankruptcy proceedings,” said NCL VP of Public Policy Telecommunications and Fraud John Breyault. “Additionally, there is concern that DNA samples may be classified as assets, raising questions about who may ultimately gain access to sensitive and private health information.    

23andMe’s privacy statement reads: “If we are involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets, your Personal Information may be accessed, sold or transferred as part of that transaction.” The bottom line is that all consumers have the right to delete their genetic information from 23andMe, and it is crucial to do so before any potential changes in ownership or privacy policies occur.  NCL urges consumers to take action to protect their data 

The California Attorney General has issued a consumer alert urging individuals to exercise their rights under state privacy laws, including the right to delete their data and request the destruction of any biological samples held by the company. Even mainstream media outlets like The Washington Post are urging consumers to exercise their rights, publishing a story this morning entitled “Delete your DNA from 23andMe right now.”   

 

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About the National Consumers League (NCL)     

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.  

Trump administration’s decision to freeze electric vehicle infrastructure program: Consumers will pay the price 

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829

Washington, DC — The National Consumers League (NCL) is alarmed by the Trump administration’s recent decision to freeze a vital program designed to expand electric vehicle (EV) infrastructure and support clean energy initiatives across the country. The National Electric Vehicle Infrastructure (NEVI) program, created under the Biden administration, allocates nearly $5 billion to assist states in developing a national network of 500,000 electric vehicle charging stations along designated alternative fuel corridors.

“As of March 2024, there are nearly six million battery electric vehicles and plug-in hybrids on the road, and that number is growing daily,” said NCL CEO Sally Greenberg. “NCL believes this decision was a misstep that will ultimately cost consumers, as expanding charging infrastructure is essential to advancing clean transportation and reducing our reliance on fossil fuels.”

This program was intended to bolster EV infrastructure improvements, primarily through the installation of new chargers. However, the Trump administration’s decision to freeze $3 billion in funding for EV charging stations is a significant setback for consumers.

Virginia has a total of 56,000 EVs, and the state is already beginning to feel the effects of this decision. 51 of its 53 planned electric vehicle charging stations are now on hold after the Trump administration rescinded funding. Attorneys at the Southern Environmental Law Center have called the freeze legally questionable.

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About the National Consumers League (NCL)    

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.

Advocates: Congress must step up and demand answers on attempted FTC firings 

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829

Washington, DC — Today, the National Consumers League and 24 other public interest organizations urged leaders of the House Energy and Commerce and Senate Commerce committees to investigate President Trump’s attempt to fire half of the commissioners at the Federal Trade Commission. The groups also urged the Senate to freeze President Trump’s nomination of Mark Meador to be the newest commissioner at the FTC until Commissioners Alvaro Bedoya and Rebecca Slaughter regain full and permanent access to their Senate-confirmed positions. 

“The president’s actions are harmful and illegal,” said NCL Vice President of Public Policy, Telecommunications, and Fraud John Breyault. “The Commission’s common sense, non-partisan work of cracking down on scammers and protecting children’s privacy cannot move forward without a fully functional FTC. Attempting to remove Commissioners Bedoya and Slaughter from the agency directly impedes the Commission’s ability to protect the American public.” 

Just one week before the attempted firings, the FTC reported a 25% increase in year-over-year reported dollar losses to scammers. As a critical law enforcement agency responsible for protecting consumers from financial crimes and returning money for victims, the FTC received over 6.5 million consumer reports in 2024. The agency also returned $337.3 million to consumers last year—money that would be in the pockets of scammers and other criminals if the agency did not have a functioning complement of commissioners. 

On the letter, NCL was joined by AFT, Americans for Financial Reform Education Fund (AFREF), Asian Americans Advancing Justice | AAJC, Center for Democracy & Technology, Center for Digital Democracy, Center for Responsible Lending, Center for Science in the Public Interest, Check My Ads Institute, Consumer Action, Consumer Federation of America, Demand Progress, Electronic Privacy Information Center (EPIC), Fight for the Future, Free Press, Muslim Advocates, National Association of Consumer Advocates, National Consumer Law Center, National Consumers League, New America’s Open Technology Institute, Public Citizen, Public Knowledge, Tech Justice Law Project, Travelers United, Virginia Citizens Consumer Council, and Workers Injury Law & Advocacy Group. 

The organizations’ letter to House and Senate can be found here. 

Additional reading: 

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About the National Consumers League (NCL)      

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.   

NCL applauds West Virginia lawmakers for food dye/additives ban bill 

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Media Contact: Lisa McDonald, Vice President of Communications 202-207-2829

Washington, DC – The National Consumers League (NCL) applauds West Virginia lawmakers for the passage of House Bill 2354. This bipartisan legislation amends the State Code regarding adulterated food and drugs, banning harmful food additives and dyes in processed food products sold in the state. Among the banned substances are Red Dye No. 3, Yellow Dye No. 5, Butylated Hydroxyanisole (BHA), Propylparaben, Red Dye No. 40, Yellow Dye No. 6, Blue Dye No. 1, Blue Dye No. 2, and Green Dye No. 3 – all deemed unsafe for consumption.

The bill passed the House on February 28 with a 93-5 vote and was introduced to the Senate. Last week, the Senate amended the bill, and now it must return to the House for a vote to concur with the changes. If the House passes the amended legislation it will go to the Governor’s desk to be signed into law. If enacted, the legislation would ban food products containing the colors in school nutrition programs beginning on Aug. 1, 2025, and then extend to all food sold statewide on Jan. 1, 2028.

“West Virginia is leading the way in protecting public health by banning dangerous dyes and additives from its food supply,” said NCL CEO Sally Greenberg. “It’s well known that these synthetic dyes and additives pose serious health risks, and the Mountain State is showing others how to take bold action to safeguard their residents.”

In December, NCL also urged the FDA to issue a federal ban on Red No. 3, a petroleum-based colorant known to cause cancer in laboratory animals. The FDA issued the order to revoke authorization for the use of FD&C Red No. 3 on January 15, 2025. Manufacturers who use the dye in food and drugs will have until January 15, 2027 (food and supplements) or January 18, 2028 (ingested medications), to reformulate their products.

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About the National Consumers League (NCL)

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.

NCL condemns illegal firings of FTC commissioners 

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829

March 18, 2025: Washington, DC — Today, President Trump unlawfully terminated Commissioners Alvaro Bedoya and Rebecca Slaughter from their positions at the Federal Trade Commission (FTC). Commissioner Slaughter was terminated more than five years before her term would expire; Commissioner Bedoya was terminated more than two years before his term would expire.

The Commission conducts important work to protect Americans from a range of harms, including elder fraud, children’s privacy violations, and deceptive advertising. Today’s egregious violation of the consumer protection agency’s independence jeopardizes its bipartisan mission to protect everyday Americans from marketplace harms, even those perpetrated by politically-connected individuals.

“Consumer protection work is not a partisan game,” said NCL Vice President of Public Policy, Telecommunications, and Fraud John Breyault. “With consumers losing more than $150 billion to fraud each year, we need consistent and reliable watchdogs at our law enforcement agencies. The firing of dedicated public servants because they belong to the wrong political party will make the FTC’s work even harder. NCL unequivocally condemns these firings.”

Despite its hamstrung resources, the Commission does irreplaceable work to defend Americans from bad actors like scammers and monopolists. The agency returned $324 million in refunds to Americans in 2023. Every $1 of the FTC’s costs return an estimated $14 in benefits to consumers through its consumer protection and competition law enforcement efforts.

By illegally subjecting commissioners to White House control, President Trump has sent a message that common-sense consumer protection work should not continue unless it serves his political goals. Congress established independent agencies like the FTC, the Equal Employment Opportunity Commission, and the Federal Elections Commission to ensure that federal oversight of critical issues is insulated from electoral, partisan, and personal games.

The Supreme Court has already ruled that a president cannot fire FTC commissioners simply for political purposes. The Supreme Court upheld this precedent as recently as 2020.

Further reading:

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About the National Consumers League (NCL)
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.

New legislation to protect fraud victims from tax penalties 

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829
Washington, DC – The National Consumers League (NCL) is appreciative of Representative Haley Stevens’s (D-MI) proposed legislation designed to protect fraud victims from being unfairly taxed when they are forced to tap into their 401(k)s early due to fraudulent schemes. Fraud prevention and consumer protection are central to NCL’s mission, and we strongly support this critical step in ensuring that fraud victims are not penalized further.
“Fraud victims are harmed enough when criminals steal their life savings,” said John Breyault, NCL Vice President of Public Policy, Telecommunications, and Fraud. “The last thing victims should worry about after being scammed is a bill from the IRS. NCL is thankful for Representative Stevens’ efforts to reduce the burdens fraud victims face after a crime has occurred.”
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About the National Consumers League (NCL)
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.

NCL sounds alarm over measles outbreak, calls for stronger immunization leadership

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829
Washington, DC — As of this week, there are a total of 223 cases of measles in western Texas, and it is spreading to neighboring counties in New Mexico and Oklahoma. Yet, recently confirmed Secretary of U.S. Health and Human Services Robert F. Kennedy is not actively pushing for Americans to get immunized. The National Consumers League (NCL) stands firmly on the side of science and evidence-based medicine.  In February, we expressed concern over his appointment, and now we are witnessing the significant risk to Americans’ health and well-being we previously stated.
“This spread of an extremely contagious virus should be a wakeup call to the American people and a stark reminder of the importance of immunization,” said Sally Greenberg, NCL CEO. “Decades ago, we saw a similar situation turn, polio, turn into an epidemic causing major disabilities and death to millions of Americans. We cannot go back. As a nation, our leaders and lawmakers should lead with facts, scientific data, and a commitment to public well-being.”
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About the National Consumers League (NCL)
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.

NCL opposes effort to shutter ED and defund education 

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829

Last night, the Trump Administration began firing almost half of the U.S. Department of Education’s (ED) staff and kicked employees out of the DC office. President Trump and Education Secretary McMahon have made clear that this is only the beginning of their efforts to shut down ED entirely. With these most recent firings, ED is down to approximately 2,000 employees to handle a massive portfolio that includes administering billions of dollars in funding for rural and low-income public schools across the nation.

“The Education Department plays a critical role in our public education system despite being the smallest of the cabinet agencies,” said Eden Iscil, NCL Senior Public Policy Manager. “Weakening—or eliminating—the Department serves no purpose other than to defund our schools, allow for greater discrimination in education, and eliminate oversight of the private companies we pay to manage trillions of dollars in student loans. Leaders in Congress and the states must stand up and support the agency.”

With its already strained resources, ED enforces civil rights law, distributes billions of dollars to rural and low-income schools, and oversees trillions of dollars in aid and loans for higher education. The agency’s funding makes up less than 3% of the federal budget.

ED’s resources disproportionately go to states that largely voted for Republicans over Democrats in the last election. Mississippi, South Dakota, and Arkansas have some of the highest dependency on federal funding for their public schools, while states like New York, New Jersey, and Connecticut rely the least on ED.

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About the National Consumers League (NCL)   

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org. 

Trump administration shortens ACA enrollment, threatening healthcare for millions of consumers

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 Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829      

Washington, DC – Millions of Americans would be affected by the Trump administration’s attempts to shorten the Affordable Care Act (ACA) open enrollment period and eliminate the monthly enrollment option for low-income families.   

By shortening the open enrollment window from 12 weeks to just 30 days, the proposal issued by the Centers for Medicare and Medicaid Services (CMS) would inevitably result in eligible individuals failing to enroll in coverage. The drastic reduction in time creates unnecessary barriers to enrollment for consumers, particularly those who need time to research their options, gather necessary documentation, contact brokers, or navigate the enrollment process. This is a direct attack on consumers’ access to healthcare, disproportionately affecting vulnerable populations, including low-income families, the elderly, and those with limited internet access or health literacy.  

In Trump’s first term, the administration cut outreach and public education funding and allowed short-term plans that offer subpar coverage, leading to a significant drop in ACA enrollment. This latest attempt will create further confusion and chaos for consumers seeking affordable healthcare options.     

Additionally, the CMS proposal to deny ACA coverage to immigrant “Dreamers”—young people brought to the U.S. illegally as children—raises further concerns. These individuals are hardworking, tax-paying contributors to the U.S. economy and should not be excluded from accessing healthcare plans. CMS also proposed limiting coverage for gender-affirming care starting in 2026.    

“This is a cruel and calculated attempt to roll back the ACA, undermine consumers, and restrict access to healthcare for millions,” said Sally Greenberg, NCL CEO. “By shortening the enrollment period, the administration is making it harder for hardworking Americans to find the coverage they need. Denying Dreamers access to health care is unjust, shortsighted, and could put in danger the broader community. We are disappointed by this proposal as Mr. Trump has pledged not to harm Dreamers.”   

In December of 2024 President Trump discussed Dreamers during a “Meet the Press” interview: “We have to do something about the Dreamers because these are people that have been brought here at a very young age,’ If Dreamers have the right to stay in this country, as Mr. Trump says they should, it is essential they have the same health care options available as all other Americans.

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About the National Consumers League (NCL)      

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org. 

NCL joins 300+ organizations to oppose the dismantling of the Consumer Financial Protection Bureau   

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Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829     

Washington, DC – Next week, the National Consumers League (NCL) will join hundreds of consumer advocates and constituents from 45 states to urge lawmakers to support a strong and independent Consumer Financial Protection Bureau (CFPB). Since its creation in 2011, the CFPB has recovered more than $21 billion for consumers who have been harmed by corporate greed and fraud. Cutting the CFPB would leave millions of hard-working Americans vulnerable to scams and other illegal conduct. 

Prior to the meetings, NCL also signed on to a letter urging Congress to restore a strong and independent CFPB and vote against any legislative attacks on the agency. During the meetings, known as Consumer Advocacy Week, constituents and consumer advocates will request legislators to oppose active efforts to undo key consumer protections, such as capping most bank overdraft fees at $5, removing medical debt from credit reports, and ensuring payment apps comply with the law.  

“The CFPB has been a lifeline for millions of consumers nationwide. In just a few years, the agency has punched far above its weight, returning billions of dollars to individuals harmed by the illegal conduct of banks, student loan servicers, and other bad actors,” said Eden Iscil, NCL Senior Public Policy Manager. “This coalition has brought hundreds of advocates from across the country to tell Congress to step up and protect the CFPB.”  

As the watchdog for consumers everywhere, the CFPB holds financial institutions accountable when they defraud and cheat people, and the agency has returned more than $21 billion to over 200 million people in the form of restitution or canceled debts. The CFPB has fiercely protected everyday Americans and their families against frauds, rip-offs, and market failures, and now it is our time to safeguard its existence.    

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About the National Consumers League (NCL)    

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.