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Health

The need for quality, affordable, accessible care

Americans are spending billions on rising healthcare costs and need access to affordable, effective medicines and high-quality care.

How we help

NCL’s health policy program advocates for safe and effective medicines and affordable, patient-centered health care. Our groundbreaking Script Your Future program helps consumers improve medication adherence and live longer, healthier lives.

Featured Content

National Consumers League names Robin Strongin to lead Health Policy

December 14, 2022
National Consumers League (NCL)-the nation’s oldest consumer advocacy organization, has named Robin Strongin Senior Director, Health Policy, beginning January 4, 2023.  Robin will oversee NCL’s robust health care portfolio.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-12-14 23:50:042022-12-14 23:51:56National Consumers League names Robin Strongin to lead Health Policy

Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

August 26, 2022
Today, more than 40% of Americans live in communities with unhealthy levels of air pollution and every year, millions of deaths and chronic illnesses have been found to be directly caused by various pollutant types.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-08-26 17:51:302022-09-07 16:40:36Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

Menthol cigarettes are going up in smoke

June 29, 2022
Sally Greenberg sits down with members of the African American Tobacco Control Leadership Council, the country’s leading public health education and advocacy organization taking on Big Tobacco to save Black lives.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-06-29 15:31:112023-03-05 16:02:38Menthol cigarettes are going up in smoke

How did my medicine get here? Behind the scenes of the healthcare supply chain

June 21, 2022
Many of us take for granted that our medicines are available at the pharmacy whenever needed. Despite the disruptions of the pandemic, U.S. healthcare supply chains remained incredibly resilient, safe and reliable.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-06-21 13:49:172023-03-05 16:00:48How did my medicine get here? Behind the scenes of the healthcare supply chain
Jeanette Contreras portrait

Leaders in Congress support safe OTC hearing aid standards

May 4, 2022
Mild to moderate hearing loss is a difficult reality that millions of Americans struggle with, which is why the availability of over-the-counter (OTC) hearing aids is exciting for those who are impacted by hearing loss. While making OTC hearing aids more accessible is a promising step for consumers, we at NCL would be remiss if we didn’t underscore our concerns around the Food and Drug Administration’s (FDA) proposed OTC hearing regulations as they currently exist.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-05-04 16:47:122022-05-04 18:36:45Leaders in Congress support safe OTC hearing aid standards
Jeanette Contreras portrait

How to protect consumers from PBM greed

April 20, 2022
The rising cost of health care is a sore point for all consumers and nowhere is it more glaring than at the pharmacy counter. However, consumers are largely unaware that Pharmacy Benefit Managers – or PBMs – are the middlemen working behind the scenes with very little competition and accountability.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-04-20 15:04:312022-04-20 15:04:31How to protect consumers from PBM greed

NCL Briefing: measuring the 340B program’s impact on charitable care and operating profits for covered entities

March 31, 2022
Join the National Consumers League for a panel discussion with experts from Health Capital Group, the Community Oncology Alliance, and Johns Hopkins on this new white paper, which analyzes 340B’s impact on hospital profit margins and charitable care spending and attempts to quantify the amount of program benefits accruing to covered entities, contract pharmacies and patients.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-03-31 21:46:342022-04-26 22:53:43NCL Briefing: measuring the 340B program’s impact on charitable care and operating profits for covered entities

Maintaining customer trust in a booming eCommerce marketplace

March 11, 2022
Happy Consumer Protection Week! Are you an online shopper? This podcast is for you!
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-03-11 14:39:362023-03-05 15:49:18Maintaining customer trust in a booming eCommerce marketplace

Why we need more Black health professionals in the workforce

February 10, 2022
A lack of diversity in the health care workforce has been a persistent issue in the United States, posing significant implications to health equity, particularly for the Black or African American community.
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https://nclnet.org/wp-content/uploads/2022/02/Milenas-headshot-180x180-2.jpeg 180 180 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-02-10 20:39:282022-02-10 20:41:28Why we need more Black health professionals in the workforce

A woman’s right to choose: Equal access to health care threatened

February 7, 2022
This episode contains sensitive topics, such as abortion and sexual violence, that may be difficult for some audiences. Listener discretion advised. As listeners of our podcast know, the National Consumers League believes in equal health care access for all, and that includes a woman's right to choose.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2022-02-07 19:58:362023-03-05 15:43:56A woman’s right to choose: Equal access to health care threatened

Illicit drugs and the digital marketplace

February 3, 2022
We, as consumers — at the touch of a few buttons — have access to drugs and devices that would have required far more time and effort to acquire in the past. But with that ease of access, we also have millions of tainted or suspect products peddled to consumers, including counterfeit drugs.
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https://nclnet.org/wp-content/uploads/2022/02/Milenas-headshot-180x180-2.jpeg 180 180 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2022-02-03 21:24:282022-02-03 21:26:06Illicit drugs and the digital marketplace

NEW RESEARCH: CBD companies exploiting academic partnerships for marketing purposes

January 20, 2022
A new study illuminates the need for FDA regulatory approval and stronger oversight to address the risks to consumers and patients alike when CBD companies exploit that system.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2022-01-20 01:00:002022-01-20 13:21:54NEW RESEARCH: CBD companies exploiting academic partnerships for marketing purposes
Jeanette Contreras portrait

Reason to celebrate: No more surprise medical bills in the new year!

January 14, 2022
More than half of U.S. consumers reported recently receiving an unexpected medical bill. The No Surprises Act will help.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2022-01-14 14:30:122022-01-14 19:32:31Reason to celebrate: No more surprise medical bills in the new year!

NCL offers support for Increasing Access to Biosimilars Act (S. 1427)

December 16, 2021
Biosimilars pose great potential to reduce health care costs.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-12-16 22:05:352021-12-16 22:08:02NCL offers support for Increasing Access to Biosimilars Act (S. 1427)
Jeanette Contreras portrait

Listen up: FDA’s proposed OTC hearing aid rule

December 9, 2021
The FDA has proposed making hearing aids available as an OTC. But advocates are concerned that the regulations aren't exactly right when it comes to thresholds for volume.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-12-09 16:33:112021-12-10 00:05:41Listen up: FDA’s proposed OTC hearing aid rule

The drug pricing middlemen driving up drug costs

December 1, 2021
Healthcare continues to be front and center in the national discourse, particularly in the midst of the pandemic. As Congress works on policy solutions to lower healthcare costs for consumers, we face an unfair disadvantage when it comes to what we’re paying at the pharmacy counter.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-12-01 17:09:382023-03-05 15:45:42The drug pricing middlemen driving up drug costs

NCL applauds approval of the pediatric COVID-19 vaccine

November 2, 2021
NCL applauds the coordinated efforts of the FDA and the CDC to approve the Emergency Use Authorization (EUA) of the Pfizer-BioNTech COVID-19 vaccine for children ages 5 to 11.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-11-02 22:10:522021-11-02 22:15:16NCL applauds approval of the pediatric COVID-19 vaccine
Jeanette Contreras portrait

¿Buscando cobertura médica? Healthcare.gov open enrollment begins November 1

October 14, 2021
As we commemorate Hispanic Heritage Month, the National Consumers League (NCL) wants Latino consumers to better understand their health coverage options through the Health Insurance Marketplace.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-10-14 17:19:132021-10-14 17:59:40¿Buscando cobertura médica? Healthcare.gov open enrollment begins November 1

What’s in that gummy bear could be hazardous to your kid’s health

August 17, 2021
CBD-infused foods and candies are often packaged and marketed to appeal to children, but buyer beware – there are a number of harmful ingredients that could be in a seemingly harmless gummy bear. Parents, teachers, guardians, and loved ones should know that none of the non-prescription CBD products on the market today – and the false medical claims often used to market these to consumers – have been tested or approved by the FDA.
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https://nclnet.org/wp-content/uploads/2021/08/group-kids-going-school-together.jpg 1075 2122 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-08-17 18:27:172021-08-17 19:55:27What’s in that gummy bear could be hazardous to your kid’s health
Intern Spencer Cramer

Redesigning our communities to fight health disparities

August 17, 2021
Even more illuminating, one of the best predictors of health outcomes is a person’s zip code. In many major U.S. cities, the gap in life expectancy between the highest and lowest zip codes is 20+ years.
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https://nclnet.org/wp-content/uploads/2021/07/Spencer-Cramer-Headshot.jpg 417 417 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-08-17 17:52:522021-08-17 17:52:52Redesigning our communities to fight health disparities

Addressing vaccine hesitancy with community-driven messaging

July 22, 2021
Even though there is overwhelming evidence in support of the COVID-19 vaccines and their safety, vaccine hesitancy still looms.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-07-22 00:42:582021-07-22 14:32:41Addressing vaccine hesitancy with community-driven messaging

Don’t forget to take advantage of Healthcare.gov Special Enrollment Period

July 15, 2021
There’s still time to get marketplace coverage and expanded financial assistance through August 15.
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https://nclnet.org/wp-content/uploads/2021/07/special-enrollment.png 1564 3126 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-07-15 13:08:162021-07-15 13:26:00Don’t forget to take advantage of Healthcare.gov Special Enrollment Period
Intern Spencer Cramer

Gun violence is a public health crisis—We must treat it like one

July 1, 2021
2020 saw a 10 percent increase in gun deaths over the previous year, fueled primarily by a 25 percent rise in homicides and accidental gun deaths. Experts say the recent spike is due to the economic and social stresses of the pandemic, and the numbers are showing no signs of abating as we open back up post-COVID.
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https://nclnet.org/wp-content/uploads/2021/07/Spencer-Cramer-Headshot.jpg 417 417 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-07-01 14:08:422021-07-15 12:58:54Gun violence is a public health crisis—We must treat it like one

Addressing health inequities for LGBTQ communities: During PRIDE month and 365 days a year

July 1, 2021
Research shows that LGBTQ individuals who live in communities with high levels of anti-LGBTQ prejudice die sooner—12 years on average—than those living in more accepting communities. Queer and Trans people of color (QTPOC) face even higher rates of fatal violence, as 44 transgender and gender non-conforming people died to anti-trans violence in 2020.  
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-07-01 13:17:202021-07-01 13:18:41Addressing health inequities for LGBTQ communities: During PRIDE month and 365 days a year

Maternal vaccines: Safe for mom and baby

June 23, 2021
In the last few weeks, I’ve noticed an old friend from high school, a mother of an infant, consistently posting anti-vaccine content to her social media. Her posts, which were initially mere reflections, have transformed into full-on conspiracy theories about the safety of the COVID-19 vaccines and cast doubts about to the speed of their approval.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-06-23 17:16:202021-06-23 17:20:45Maternal vaccines: Safe for mom and baby

AAPI Heritage Month: The ‘Model Minority Myth’ and its negative impact on health disparities

May 28, 2021
The AAPI community’s resilience against these factors, while commendable, has contributed to the myth of the “Model Minority,” and has led to a host of social and health inequities.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-05-28 15:40:252021-05-28 15:40:25AAPI Heritage Month: The ‘Model Minority Myth’ and its negative impact on health disparities
Jeanette Contreras portrait

Como detectar el COVID-19 en casa

May 19, 2021
Tras la efectiva campaña de vacunación, las pruebas de detección serán claves para seguir evitando contagios del coronavirus y resumir a la normalidad.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-05-19 15:13:522021-05-20 18:23:08Como detectar el COVID-19 en casa

The decline in COVID-19 testing nationwide could derail pandemic response wins

May 18, 2021
COVID-19 testing has been a critical component of the nation’s pandemic response...
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-05-18 15:06:182021-05-18 15:23:03The decline in COVID-19 testing nationwide could derail pandemic response wins

NCL statement regarding efforts to ban menthol tobacco products

April 30, 2021
The ban on menthol-flavored tobacco products is a historic measure to address health disparities present in vulnerable communities as a result of unfair marketing practices.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-04-30 21:00:142021-05-06 14:29:26NCL statement regarding efforts to ban menthol tobacco products

Giving a voice to women facing preterm birth

April 26, 2021
The new Preterm Birth Prevention Alliance brings together a coalition of 15 patient advocacy organizations who share concerns about the grave state of preterm birth in the United States and its disproportionate impact on Black, Indigenous, and women of color.
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https://nclnet.org/wp-content/uploads/2020/08/Sally2017_92px.jpg 968 968 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-04-26 18:08:312021-04-26 18:08:31Giving a voice to women facing preterm birth

Leading patient advocates launch preterm birth prevention alliance to protect critical access to the sole fda-approved class of therapies to reduce recurrent preterm birth

April 20, 2021
For the fifth year in a row, the U.S. preterm birth rate has increased (to 10.2 percent of births), and preterm birth and its complications were the second largest contributor to infant death across the country. Preterm birth also represents a significant racial health disparity, with Black women in America experiencing premature delivery at a rate 50 percent higher than other racial groups throughout the country.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 heroslider https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png heroslider2021-04-20 12:39:452021-04-20 16:17:00Leading patient advocates launch preterm birth prevention alliance to protect critical access to the sole fda-approved class of therapies to reduce recurrent preterm birth

Antimicrobial Resistance is a major looming threat to global health systems

April 16, 2021
If the pandemic has taught us anything, it’s that threats to our health care system can change lives...
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https://nclnet.org/wp-content/uploads/2020/08/Sally2017_92px.jpg 968 968 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-04-16 21:36:092021-04-16 21:46:26Antimicrobial Resistance is a major looming threat to global health systems
Jeanette Contreras portrait

Expanded Medicaid coverage for postpartum care

March 29, 2021
The COVID-19 pandemic has enlightened us to how the social determinants of health adversely impact maternal...
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-03-29 13:33:382021-03-29 13:35:26Expanded Medicaid coverage for postpartum care

Consumers face an unfair disadvantage at the pharmacy counter

March 24, 2021
A variety of factors drive drug costs, some of which are obvious: the cost of research and development, distributing the product, the pharmacies’ profits – but there is one far less known cause of price increases: PBMs, short for pharmacy benefit managers.
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https://nclnet.org/wp-content/uploads/2020/08/Sally2017_92px.jpg 968 968 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-03-24 14:26:052021-03-29 13:35:51Consumers face an unfair disadvantage at the pharmacy counter
Jeanette Contreras portrait

La tercera vacuna trae esperanza

March 5, 2021
Gracias a la autorización de la nueva vacuna, presidente Biden afirma que para el fin de mayo habrá vacunas para todos los adultos en EEUU.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-03-05 15:26:392021-03-09 15:41:29La tercera vacuna trae esperanza

Getting more vaccines in arms: Trust and efficiencies

March 2, 2021
Guest blog by Farah Towfic, PharmD, MBA, director of the…
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-03-02 23:57:062021-03-29 13:36:43Getting more vaccines in arms: Trust and efficiencies

Preventing the spread of COVID-19: Testing & genetic sequencing efforts in response to emerging variants

February 23, 2021
With growing concerns regarding the impact of emerging COVID-19 variants, testing and genetic sequencing are critical components of broader return-to-work, return-to-school, and public health surveillance efforts.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-02-23 19:03:282021-03-29 13:37:20Preventing the spread of COVID-19: Testing & genetic sequencing efforts in response to emerging variants

Addressing health inequity: A critical step towards a successful national vaccine rollout strategy

February 22, 2021
COVID-19 has exposed the fact that conditions in the environments in which people are born, live, learn, work, play, worship, and age threaten to impede access to the vaccine.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2021-02-22 16:49:192021-03-29 13:37:13Addressing health inequity: A critical step towards a successful national vaccine rollout strategy

What the new COVID-19 variants mean for consumers

February 12, 2021
While the variants all differ slightly in their function, they all possess a specific mutation called D614G — a shared trait that allows these new strains to spread more quickly than the predominant virus.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-02-12 20:21:482021-02-12 20:31:19What the new COVID-19 variants mean for consumers

Mask up! New Executive Order mandating mask-wearing a welcome development

January 26, 2021
Over the course of the pandemic, mask-wearing has unfortunately morphed into a highly polarizing political issue. But the President's new EO makes it very clear.
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https://nclnet.org/wp-content/uploads/2020/10/NissaS_bio.jpg 134 134 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-01-26 18:17:242021-01-26 18:20:35Mask up! New Executive Order mandating mask-wearing a welcome development

Welcoming FDA’s call for better science, more research on CBD

January 24, 2021
In 2019, in response to the growing retail market of untested,…
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Melody Merin https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Melody Merin2021-01-24 20:56:372021-01-25 21:10:42Welcoming FDA’s call for better science, more research on CBD

COVID vaccine: Credit where credit is due

January 19, 2021
There’s light at the end of the tunnel because, in record time, America’s pharmaceutical companies have successfully developed safe and highly effective vaccines.
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Ensuring completion of series for the COVID-19 vaccine

January 7, 2021
Most people would agree that coronavirus has worn our country down, and experts have a new fear: that "caution fatigue" is causing a spike in cases.
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NCL testified before CDC committee on COVID-19 vaccine recommendations

December 22, 2020
NCL is deeply disappointed at the Department of Transportation’s decision late Friday to finalize its Rule on Defining Unfair or Deceptive Practices.
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NCL testified before FDA committee meeting on Pfizer-BioNTech COVID-19 vaccine

December 11, 2020
NCL is deeply disappointed at the Department of Transportation’s decision late Friday to finalize its Rule on Defining Unfair or Deceptive Practices.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 NCL staff https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png NCL staff2020-12-11 15:58:452021-03-09 08:42:02NCL testified before FDA committee meeting on Pfizer-BioNTech COVID-19 vaccine

NCL statement on vaccine for COVID-19

November 12, 2020
NCL welcomes the very hopeful news that a coronavirus vaccine with a reported efficacy rate of 90 percent may be approved and rolled out in the next few months.
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Jeanette Contreras portrait

Low-income essential workers lack adequate COVID-19 testing

November 9, 2020
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What you should know about the Healthcare.gov Open Enrollment

October 30, 2020
From November 1, 2020 to December 15, 2020, consumers will be able to enroll in health coverage through the health insurance marketplace, Healthcare.gov.
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CMS Proposed Rule Ignores Data & Bipartisan Support for the Value of Copay Assistance Programs

October 26, 2020
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NCL testified before FDA Vaccines and Related Biological Products Advisory Committee

October 23, 2020
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COVID-19 increasing health concerns about obesity

October 15, 2020
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The FDA must create a win-win path leading to new data on 17P and protect access for pregnant mothers

October 14, 2020
You may never have heard of hydroxyprogesterone caproate or “17P”—it’s a mouthful, but the role it has played in the lives of thousands of pregnant mothers and babies is easy to understand.
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Hispanic Heritage Month: Focus on the importance of participating in research through clinical trials

October 14, 2020
Hispanic Heritage Month: Focus on the importance of participating…
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Our work to preserve America’s treatment option to fight premature birth

October 14, 2020
You may never have heard of hydroxyprogesterone caproate or “17P”—it’s a mouthful, but the role it has played in the lives of thousands of pregnant mothers and babies is easy to understand.
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National Consumers League statement urging FDA to make patient-centered decision on only available treatment option for pregnant mothers at risk for recurrent preterm birth

October 7, 2020
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NCL concerned Congress seeks to approve unreviewed CDB products

September 17, 2020
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Mail-in and absentee voting during COVID-19

September 10, 2020
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FDA Emergency Use Authorizations and public trust for COVID-19 treatments

September 4, 2020
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Compromised access to the USPS could result in worsened health outcomes

August 24, 2020
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Be wary of bad hand sanitizers

August 21, 2020
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‘Should I stay or should I go?’ How the pandemic has affected higher education

August 13, 2020
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Understand the opioid epidemic and protect yourselves and loved ones

August 7, 2020
Knowing the rights, risks and responsibilities of prescription…
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Consumers for Safe CBD is working to protect, educate Americans

August 7, 2020
As America’s premier consumer advocacy organization, with a…
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Reopening the economy prematurely has dire consequences for states

August 6, 2020
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Farmworkers and COVID: ‘A ticking time bomb’

August 5, 2020
It’s been referred to as a “ticking time bomb,” the coronavirus…
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Meet the winners of this year’s Script Your Future Medication Adherence Team Challenge

July 31, 2020
The 2020 Medication Adherence Team Challenge is part of the national…
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Advocating for emergency air transport coverage

July 31, 2020
This spring, NCL sent a letter to the CEOs of Cigna, Aetna, and…
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At-home vision assessments no replacement for in-office visits

July 31, 2020
With COVID-19 keeping many of us at home, companies claiming…
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Sorting through bogus health claims

July 31, 2020
Across the United States, people are rising to the historic health…
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The overlooked epidemic: COVID-19 and its relationship to opioids

July 24, 2020
The coronavirus pandemic isn’t the only major public health…
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NCL leads advocates in urging FDA to protect patient access to critical therapy for preterm birth

June 30, 2020
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The impact of COVID-19 on child labor

June 30, 2020
Combatting child labor during a global pandemic is a staggering…
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NCL statement condemning threats to public health officials

June 25, 2020
June 25, 2020 Media contact: National Consumers League…
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Vaccine hesitancy and the unique challenge of COVID-19

June 23, 2020
By NCL Health Policy intern Talia Zitner Around the globe, researchers…
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Top of mind: HHS’s reversal of Obama-era transgender nondiscrimination healthcare protections

June 16, 2020
By Nissa Shaffi, NCL Associate Director of Health Policy On…
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Keeping meatpacking workers safe in the age of COVID-19: A view from the front lines

June 10, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition…
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Observing World Food Safety Day: Food safety, foodborne illnesses, and the pandemic.

June 4, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition…
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The National Consumers League supports expanded COBRA coverage

May 28, 2020
By Sally Greenberg, NCL Executive Director In a perfect world,…
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A prescription for surviving COVID-19 nutritionally intact: eat well, get sunshine

May 28, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition Fellow Overeating…
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Alcohol consumption during COVID-19: What the consumer needs to know

May 27, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition Fellow While…
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NCL expresses concern about Trump Administration’s NBPP rule for 2021

May 26, 2020
May 26, 2020 Media contact: National Consumers League…
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NCL expresses concern about Trump Administration’s NBPP rule for 2021

May 26, 2020
Media contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832 Washington, DC—The National Consumers League (NCL), the nation’s pioneering consumer advocacy organization, expresses concern about the Trump Administration’s Notice of Benefit and Payment Parameters Rule for 2021.
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An old threat to public health is resurfacing amidst COVID-19 worries

May 21, 2020
By Sally Greenberg, NCL Executive Director While all of us have…
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Top of mind: Full coverage should mean full coverage

May 18, 2020
By Nissa Shaffi, NCL Associate Director of Health Policy The…
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Grocery stores and safety measures needed to protect workers and customers during COVID-19

May 13, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition…
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National Consumers League statement of support for Emergency Broadband Connectivity Fund

May 12, 2020
May 12, 2020 Contact: National Consumers League…
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Protecting consumers from COVID-19 Scams: A virtual panel event with Pennsylvania Attorney General Josh Shapiro and fraud experts

May 8, 2020
May 8, 2020 Watch recording here Contact:…
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More tips for staying healthy during the COVID-19 outbreak and beyond

May 5, 2020
By Sally Greenberg, NCL Executive Director COVID has changed…
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NCL calls on insurers to cover air medical services during COVID-19 crisis

May 5, 2020
May 5, 2020 Contact: National Consumers League…
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NCL: Annual in-office eye exams help diagnose potential problems

May 4, 2020
May 4, 2020 Contact: National Consumers League…
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COVID-19 shows us the extraordinary importance of vaccines

May 1, 2020
By Sally Greenberg, NCL Executive Director What a bittersweet…
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COVID-19, what could it cost you?

April 30, 2020
By Nissa Shaffi, NCL Associate Director of Health Policy As…
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How do we deal with the ‘ticking time bomb’ in agriculture?

April 28, 2020
Reid Maki is the director of child labor advocacy at…
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A few out-of-the-box consumer tips for staying safe from coronavirus

April 24, 2020
By Sally Greenberg, NCL Executive Director At the National Consumers…
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Coronavirus and unsafe working conditions for poultry workers

April 24, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition Fellow In…
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Nation’s pioneering consumer-worker organization demands massive COVID-19 testing production, universal testing

April 23, 2020
April 23, 2020 Contact: National Consumers…
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Born too soon; the difference a day makes

April 21, 2020
Dr. Joia Adele Crear-Perry of the National Birth Equity Collaborative...
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Universal testing: What is the hold-up?

April 16, 2020
By Sally Greenberg, NCL Executive Director During…
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Safe takeout options under coronavirus

April 14, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition Fellow The…
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Ten years later: ACA consistently proves to be America’s safety net, especially in times of crisis

March 30, 2020
By Nissa Shaffi, NCL Associate Director of Health Policy Ten…
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Fighting for crucial consumer, worker protections and fair outcomes in coronavirus environment

March 27, 2020
March 27, 2020: A message to our online community about how…
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Coronavirus and food safety: What you need to know

March 26, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition…
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Idaho Patient Act a model for other states for protecting consumers from medical debt

March 20, 2020
I spent a week last month in Boise with two members of the staff…
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Coronavirus: Keeping yourself and your family well-fed in a crisis

March 19, 2020
By Nailah John, Linda Golodner Food Safety and Nutrition Fellow Social…
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NCL statement: Thank you, quarantine workers

March 18, 2020
March 18, 2020Media contact: National Consumers League – Carol…
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NCL applauds crackdown on sham coronavirus cures

March 17, 2020
March 17, 2020 Media contact: National Consumers League…
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COVID-19 is here and thriving, and ‘flattening the curve’ is the only way forward

March 16, 2020
Like most Americans, you probably feel besieged by the…
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NCL commends House passage of anti-tobacco bill

March 3, 2020
March 3, 2020Media contact: National Consumers League – Carol…
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Understanding the rapidly emerging disease, Coronavirus

February 27, 2020
On January 30, the World Health Organization (WHO) designated…
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New study says Chipotle management presses workers to work sick and skip food safety practices, creating health risks for consumers

February 6, 2020
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Measles, it ain’t over until it’s over

December 21, 2019
Dr. Linda Fu, general pediatrician at Children’s National Health System ....
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NCL urges caution following HHS drug importation announcement

December 20, 2019
December 20, 2019 Media contact: National Consumers…
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Capitol Hill briefing alerts lawmakers to public health ramifications of CBD proliferation

December 18, 2019
Lawmakers need to be aware of the threats to public health…
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Letter to Congress: NCL calls for safe CBD

December 10, 2019
December 10, 2019Dear Member of Congress, For more than 120 years,…
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NCL announces new action center to help patients steer clear of deadly counterfeit drug websites

December 5, 2019
December 5, 2019Media contact: National Consumers League –…
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NCL statement on nomination of Hahn to head FDA

December 3, 2019
December 3, 2019Media contact: National Consumers League –…
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National Consumers League statement on FDA action regarding CBD

November 29, 2019
November 29, 2019Leading consumer advocate urges ‘buyer beware’…
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Consumer groups call for FDA oversight of rapidly growing CBD market

November 19, 2019
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CBD is not the cure for whatever ails you

November 1, 2019
Unless you’ve been living under a rock, you’ve surely seen…
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Why won’t New York’s governor Cuomo ban a nasty pesticide that harms children?

October 18, 2019
Reid Maki is the director of child labor advocacy at the National…
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AAOA and National Consumers League Raise Awareness About Prescription Opioid Abuse Safety

October 16, 2019
October 16, 2019Media contact: press@againstopioidabuse.org or…
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National Consumers League names Robin Strongin to lead Health Policy

December 14, 2022
National Consumers League (NCL)-the nation’s oldest consumer advocacy organization, has named Robin Strongin Senior Director, Health Policy, beginning January 4, 2023.  Robin will oversee NCL’s robust health care portfolio.
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Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

August 26, 2022
Today, more than 40% of Americans live in communities with unhealthy levels of air pollution and every year, millions of deaths and chronic illnesses have been found to be directly caused by various pollutant types.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-08-26 17:51:302022-09-07 16:40:36Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

Menthol cigarettes are going up in smoke

June 29, 2022
Sally Greenberg sits down with members of the African American Tobacco Control Leadership Council, the country’s leading public health education and advocacy organization taking on Big Tobacco to save Black lives.
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How did my medicine get here? Behind the scenes of the healthcare supply chain

June 21, 2022
Many of us take for granted that our medicines are available at the pharmacy whenever needed. Despite the disruptions of the pandemic, U.S. healthcare supply chains remained incredibly resilient, safe and reliable.
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-06-21 13:49:172023-03-05 16:00:48How did my medicine get here? Behind the scenes of the healthcare supply chain
Jeanette Contreras portrait

Leaders in Congress support safe OTC hearing aid standards

May 4, 2022
Mild to moderate hearing loss is a difficult reality that millions of Americans struggle with, which is why the availability of over-the-counter (OTC) hearing aids is exciting for those who are impacted by hearing loss. While making OTC hearing aids more accessible is a promising step for consumers, we at NCL would be remiss if we didn’t underscore our concerns around the Food and Drug Administration’s (FDA) proposed OTC hearing regulations as they currently exist.
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Jeanette Contreras portrait

How to protect consumers from PBM greed

April 20, 2022
The rising cost of health care is a sore point for all consumers and nowhere is it more glaring than at the pharmacy counter. However, consumers are largely unaware that Pharmacy Benefit Managers – or PBMs – are the middlemen working behind the scenes with very little competition and accountability.
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https://nclnet.org/wp-content/uploads/2020/09/jet_photo.jpg 471 471 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-04-20 15:04:312022-04-20 15:04:31How to protect consumers from PBM greed

NCL Briefing: measuring the 340B program’s impact on charitable care and operating profits for covered entities

March 31, 2022
Join the National Consumers League for a panel discussion with experts from Health Capital Group, the Community Oncology Alliance, and Johns Hopkins on this new white paper, which analyzes 340B’s impact on hospital profit margins and charitable care spending and attempts to quantify the amount of program benefits accruing to covered entities, contract pharmacies and patients.
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Maintaining customer trust in a booming eCommerce marketplace

March 11, 2022
Happy Consumer Protection Week! Are you an online shopper? This podcast is for you!
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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-03-11 14:39:362023-03-05 15:49:18Maintaining customer trust in a booming eCommerce marketplace

Why we need more Black health professionals in the workforce

February 10, 2022
A lack of diversity in the health care workforce has been a persistent issue in the United States, posing significant implications to health equity, particularly for the Black or African American community.
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A woman’s right to choose: Equal access to health care threatened

February 7, 2022
This episode contains sensitive topics, such as abortion and sexual violence, that may be difficult for some audiences. Listener discretion advised. As listeners of our podcast know, the National Consumers League believes in equal health care access for all, and that includes a woman's right to choose.
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National Consumers League names Robin Strongin to lead Health Policy

December 14, 2022/in Featured Home - Your Health, Health, Health policy, Press release consumer, consumer protection, fraud, Fraud.org, John Breyault, press release Press Releases /by Katie Brown

National Consumers League (NCL)-the nation’s oldest consumer advocacy organization, has named Robin Strongin Senior Director, Health Policy, beginning January 4, 2023.  Robin will oversee NCL’s robust health care portfolio.

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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-12-14 23:50:042022-12-14 23:51:56National Consumers League names Robin Strongin to lead Health Policy

Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

August 26, 2022/in Blog, Featured Home - Your Health, Health Blog Post, environment, health, health policy Blog Post /by Katie Brown

Today, more than 40% of Americans live in communities with unhealthy levels of air pollution and every year, millions of deaths and chronic illnesses have been found to be directly caused by various pollutant types.

Read more
https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-08-26 17:51:302022-09-07 16:40:36Legislation is needed to close the environmental health gaps in the Polluters Pay Principle

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Nation’s leading advocacy groups express their concern over partnership between Major League Baseball and CBD maker

November 9, 2022/in Press release consumer protection Advocacy Letters, Press Releases /by Katie Brown

The National Consumers League, along with CADCA – a national nonprofit organization committed to creating safe, healthy, and drug-free communities globally – submitted today a joint letter to the commissioners of the Food and Drug Administration (FDA) and Major League Baseball (MLB) expressing concern over the recently announced partnership between MLB and cannabidol (CBD) maker Charlotte’s Web.

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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2022-11-09 14:57:032022-11-09 15:53:30Nation’s leading advocacy groups express their concern over partnership between Major League Baseball and CBD maker

Featured Press Releases

New research reiterates the need for consumer caution, federal protection related to marijuana companies misleading claims

March 13, 2023/in CBD, Consumer Education, Consumer Protection, Health, Press release cannabis, health Press Releases /by Katie Brown

Data Science Solutions, LLC, in partnership with NCL, today released new research that dives into false or misleading medical claims made by several leading marijuana companies on their social media platforms.

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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2023-03-13 14:23:562023-03-13 14:26:01New research reiterates the need for consumer caution, federal protection related to marijuana companies misleading claims

National Consumers League statement on Gigi Sohn’s FCC nomination withdrawal

March 7, 2023/in Consumer Protection, Press release consumer protection, FCC, Sally Greenberg, Statements Press Releases /by Katie Brown

We are disappointed that Gigi Sohn’s nomination to the Federal Communications Commission was derailed by entrenched industry players and their allies in Congress.

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https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png 0 0 Katie Brown https://nclnet.org/wp-content/uploads/2020/08/NCL-logo.png Katie Brown2023-03-07 22:21:032023-03-07 22:21:03National Consumers League statement on Gigi Sohn’s FCC nomination withdrawal
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PBPA Commends HHS Funding to Support Maternal and Infant Health

The Preterm Birth Prevention Alliance (PBPA), a coalition of maternal and women’s health advocates dedicated to improving preterm birth outcomes in the United States and addressing its disproportionate impact on women of color, applauds the U.S. Department of Health and Human Services (HHS) for awarding nearly $350 million to states across the country to improve support for safe pregnancies and healthy babies.

“For far too long, U.S. maternal health care has lagged behind that of other developed countries, particularly for women of color,” noted Sally Greenberg, Executive Director of the National Consumers League. “This additional funding will enable local health departments and nonprofits to better address the health care needs of the most vulnerable mothers and their babies.”

The funding, awarded by HHS’ Health Resources and Services Administration (HRSA), will support home visiting services, increase access to doulas, address infant mortality and maternal illness, and improve data reporting on maternal mortality.

“Maternal health care in the U.S. has consistently failed women of color,” Greenberg continued.  “We applaud HHS for this additional funding that will help to improve the maternal health for all mothers and babies, especially women of color and those most at-risk.”

The funding announcement follows the release of a report by the U.S. Commission on Civil Rights which found that Native American women are more than two times more likely to die from pregnancy-related complications than white women in the U.S. This disparity was further exacerbated for Black women in the U.S., who are three to four times more likely to die from pregnancy-related complications than white women.

“In addition to expanding programs to support maternal health, we must increase representation from racially and ethnically diverse groups in research and clinical trials, particularly those studying treatment options to prevent maternal morbidity and mortality,” said Greenberg.  “The need for the additional HHS funding and the report from the Commission on Civil Rights clearly illustrate how critical representative research and real world evidence are to ensuring all mothers and their babies have the same opportunity for the best possible health outcomes.”

Diverse research for a diverse America: The value of equitable, real-world research

August 12, 2021/in Blog, Health, Prevention Blog Post

By Sally Greenberg, NCL Executive Director

While the COVID-19 pandemic has led to hardship for all Americans, it is clear that people of color have been disproportionately burdened. Across the health care continuum, addressing this disparity has become part of the broader conversation about the history of systemic racism and the underlying social determinants of health that negatively affect the mental, physical, and economic health of individuals and entire communities.

The pandemic has underscored persistent health disparities, and there is growing recognition that representation in research and clinical trials can have a profound impact on health outcomes. A lack of representation from racially and ethnically diverse groups in research and clinical trials have typically led to gaps in data, missing the opportunity to assess the full impact of various treatments and drugs across a range of populations. The collection and use of real-world research and data to inform the potential use, risks, and benefits of medical products and treatments can ultimately lead to better health outcomes, particularly for those who have been underrepresented in the past.

Existing efforts to improve inclusion

Efforts to expand diversity and representation in medical research are underway in Congress. Policymakers are encouraging the incorporation of Real World Evidence (RWE) in drug development through the recent Cures 2.0 draft legislation released by Reps. Diana Degette (D-CO-1) and Fred Upton (D-MI-6). While the status quo limits us from effectively reaching underserved populations, the proposed legislation would allow studies that include RWE for some drugs after they have been approved. At the heart of this issue is a growing appreciation that the same therapy can affect different populations in different ways, which is why Cures 2.0 supports collecting data that more accurately reflects the unique experiences and needs of patients across diverse populations.

Recognizing the potential for RWE in maternal health

The lack of representative research in the field of maternal health is undeniable, and its implications are staggering. The dismal state of maternal care in the United States reflects how our health care system has failed women of color, including by not adequately studying treatment options to prevent maternal morbidity and mortality. The need for RWE is clear when you consider the persistent disparities in health outcomes that plague minority communities.

Preterm birth and its disproportionate impact on women of color is a stark illustration of the need to make progress on representative research in maternal health. Preterm birth is the second-largest contributor to infant death in America today. Despite the tremendous physical, emotional, and financial toll that preterm birth continues to take on our country — disproportionately so on women and families of color — not enough therapeutic tools currently exist to prevent it.

Today, “17P,” the only FDA-approved treatment to help reduce the likelihood of spontaneous, recurrent preterm birth in the United States is at-risk of being withdrawn from the market in all its forms, including the branded product and five generic versions. Unfortunately there is conflicting evidence from two different clinical trials, one representative of a diverse U.S. population and another studied in a largely white population in Europe. It’s not a straightforward comparison. If 17P is withdrawn, the women most affected by preterm birth, predominantly women of color, would be left without an FDA-approved treatment option.

The FDA is considering the path forward, including additional data collection through leveraging RWE from past patient use. The success of the first (approval) trial for 17P in the impacted communities signals the importance of RWE. Continued access to 17P is, at its core, a matter of health equity. Black women must not yet again be left vulnerable to a system that historically has overlooked them.

PRETERM BIRTH PREVENTION ALLIANCE APPLAUDS FDA’S GRANTING OF HEARING FOR THE ONLY FDA-APPROVED THERAPIES TO REDUCE RECURRENT PRETERM BIRTH

WASHINGTON, DC, August 26, 2021 –

Preterm Birth Prevention Alliance a coalition of maternal and women’s health advocates dedicated to improving preterm birth outcomes in the United States and addressing its disproportionate impact on women of color, commends the U.S. Food and Drug Administration (FDA) for granting a public hearing to discuss 17P, the only FDA-approved class of branded and generic treatments to reduce preterm birth in indicated patients.

We appreciate the FDA’s willingness to hear directly from individuals facing prematurity and the providers who treat them about their experiences with 17P,” said National Consumer League’s Executive Director Sally Greenberg. “It is an important step towards better understanding variations in efficacy across diverse populations and ensuring all women have an equal chance at the best possible outcomes.”

Last week, the FDA agreed to grant Covis Pharma, the manufacturer of the branded 17P product Makena its request for a public hearing to discuss 17P. Hydroxyprogesterone caproate—or “17P”—has been approved since 2011 and is the only FDA-approved class of treatments to help prevent spontaneous, recurrent preterm birth in the United States. In 2020, the FDA proposed withdrawing 17P in all its forms, including the branded product and its five generic versions, based on conflicting efficacy data from two studies composed of vastly different populations, one predominantly inclusive of women in the U.S. most vulnerable to preterm birth and one not.

“Mothers and birthing people deserve access to the best possible treatments to prevent preterm birth. We cannot achieve birth equity if we study pregnant women as a monolith,” said Blythe Thomas, Initiative Director of 1,000 Days. “It is only by systematically researching the real-world, post-market impact of 17P on individuals from a variety of racial and ethnic backgrounds, while maintaining access for all affected, that we can reduce disparities in maternal and infant health.”

While the hearing date has not yet been set, the Alliance looks forward to sharing the perspectives of affected individuals and their physicians with the agency once the hearing is scheduled and will continue to advocate for at-risk moms and babies of all races and ethnicities.

###

ABOUT THE PRETERM BIRTH PREVENTION ALLIANCE

The Preterm Birth Prevention Alliance (PBPA) is a coalition of maternal and women’s health advocates who share a common concern about the state of preterm birth in the United States and the proposed market withdrawal of 17P, the only FDA-approved class of treatments to help prevent spontaneous, recurrent preterm birth. Formed in 2021 by the National Consumers League, the 15 partners in the PBPA seek to improve preterm birth outcomes in the United States by maintaining access to safe, FDA-approved treatment options and advocating for more diverse medical research that adequately represents the experiences of women and newborns of color. Women of color need a seat at the table. To learn more, visit www.pretermbirthalliance.org

LEADING PATIENT ADVOCATES LAUNCH PRETERM BIRTH PREVENTION ALLIANCE TO PROTECT CRITICAL ACCESS TO THE SOLE FDA-APPROVED CLASS OF THERAPIES TO REDUCE RECURRENT PRETERM BIRTH

WASHINGTON, DC, April 20, 2021 – Today, the National Consumers League (NCL), along with a coalition of patient advocacy organizations dedicated to advancing the health of mothers and infants, announced the launch of the >Preterm Birth Prevention Alliance.

Members of the Alliance are joining forces in an effort to preserve patient access to the only Food & Drug Administration-approved class of treatments for pregnant women who have previously had an unexpected, or spontaneous, preterm birth. Together, Alliance members seek to ensure that the Food & Drug Administration (FDA) hears concerns from the full range of stakeholders about the potential risks and impact of withdrawal for at-risk pregnant women and their providers.

For the fifth year in a row, the U.S. preterm birth rate has increased (to 10.2 percent of births), and preterm birth and its complications were the second largest contributor to infant death across the country. Preterm birth also represents a significant racial health disparity, with Black women in America experiencing premature delivery at a rate 50 percent higher than other racial groups throughout the country.

However, in 2020, the FDA >proposed withdrawing hydroxyprogesterone caproate, commonly called “17P” or “17-OHPC”, the only FDA-approved class of branded and generic treatments to help prevent the risk of preterm birth in women with a history of spontaneous preterm birth. The FDA is currently determining whether to hold a hearing on the status of 17P, based on conflicting efficacy data from two studies composed of vastly different patient populations, one inclusive of women in the U.S. most vulnerable to preterm birth and one not.

“We’re fighting for a more inclusive healthcare system that gives everyone an equal chance to have the best outcomes possible,” said Sally Greenberg, executive director of the National Consumers League. “We don’t believe that removing 17P from the market without gaining a better understanding of who could benefit the most from its use is in the best interests of patients, nor their healthcare providers, particularly as there are no other approved treatment options available.”

To date, 14 organizations have joined NCL to advocate for the health interests of at-risk pregnant women and infants, including: 1,000 Days; 2020 Mom; American Association of Birth Centers; Black Mamas Matter Alliance; Black Women’s Health Imperative; Expecting Health; Healthy Mothers, Healthy Babies Montana; HealthyWomen; Miracle Babies; National Birth Equity Collaborative; National Black Midwives Alliance; National Partnership for Women & Families; Sidelines High-Risk National Support Network; and SisterReach.

“As a trained obstetrician and gynecologist, I know firsthand the impact of preterm birth on Black women and birthing people. I also know that racism – not race – is the driving factor leading the disproportionate impact of preterm birth on Black women and birthing people thereby exacerbating systemic inequities in maternal and infant health. To achieve birth equity, which is the assurance of the conditions of optimal births for all people with a willingness to address racial and social inequities in a sustained effort, we must work to protect and uphold a standard of care for spontaneous, recurrent preterm births and ensure it remains accessible and affordable for all who stand in need,” added Dr. Joia Crear Perry, founder and president of the National Birth Equity Collaborative.

The Preterm Birth Prevention Alliance is calling for the FDA to grant a public hearing to fully consider all of the data, additional research methods, and stakeholder perspectives before deciding whether to withdraw approval of this critical class of therapies. The health of America’s moms and babies warrants the utmost care and consideration.

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ABOUT THE PRETERM BIRTH PREVENTION ALLIANCE

The Preterm Birth Prevention Alliance is a coalition of maternal and women’s health advocates who share a common concern about the state of preterm birth in the United States and the proposed market withdrawal of 17P, the only FDA-approved class of treatments to help prevent spontaneous, recurrent preterm birth. Formed in 2021 by the National Consumers League, we seek to improve preterm birth outcomes in the United States by maintaining access to safe, FDA-approved treatment options and advocating for more diverse medical research that adequately represents the experiences of women and newborns of color. Women of color need a seat at the table. To learn more, visit www.pretermbirthalliance.org.

Initial support for the Preterm Birth Prevention Alliance is provided by Covis Pharma.

MEDIA CONTACT:

Carol McKay, carolm@nclnet.org

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