May 5, 2025: On February 28, 2025, HHS announced rescinding the Richardson Waiver, a decades-old policy requiring voluntary public notice-and-comment periods for regulations related to public benefits like Medicare and Medicaid. While the Administrative Procedure Act (APA) does not mandate such participation for these rules, HHS has followed the waiver since 1971 to promote transparency.
May 5, 2025: How fortunate we were to be in Chicago for the 31st teen consumer education competition this April 2025. Fortunate for several reasons – Chicago is truly one of the world’s great cities: wonderful architecture, old grand buildings, and charming ethnic neighborhoods, each with its own restaurants and customs.
May 1, 2025: Washington, DC – The National Consumers League (NCL) applauds Senator Bill Cassidy, M.D. (R-LA), Ranking Member of the Senate Health, Education, Labor and Pensions (HELP) Committee, for releasing a new report exposing significant accountability gaps in the federal 340B drug discount program.
May 1, 2025: Washington, DC – This week, the House of Representatives passed three Congressional Review Act (CRA) resolutions that restricts states’ rights to establish robust tailpipe emission standards.
May 1, 2025: Washington, DC – With mounting evidence that an infodemic of disinformation about GLP-1 weight loss medicines has become America’s second obesity crisis, the National Consumers League (NCL) – a leading non-profit fighting fraud in the marketplace – today released a white paper as a blueprint for policy changes to combat the flood of false information circulating online about GLP-1 products and launched an ambitious national anti-disinformation effort called the Weight Truth with the online hub, www.weight-truth.org, to drive action.
April 29, 2025: Washington, DC – The National Consumers League (NCL) praises the U.S. House of Representatives for its overwhelming and bipartisan vote to pass the TICKET Act (H.R. 1402)—a critical step toward reforming the broken live event ticketing market.
April 29, 2025: Washington, DC – The National Consumers League praises the U.S. House of Representatives for the passing of several pieces of legislation that strengthen consumer protections, enhance public safety, and reinforce supply chain resilience. The passage of H.R. 973 – Setting Consumer Standards for Lithium-Ion Batteries Act, H.R. 1442 – Youth Poisoning Protection Act, and H.R. 2444 – Promoting Resilient Supply Chains Act of 2025 marks a significant step forward in safeguarding the well-being of American families.
April 27, 2025: Washington, DC – Today, Wisconsin’s Pewaukee High School students were crowned the 2025 Varsity LifeSmarts National Champions in Chicago, Illinois. Coached by Shawn Prell, the winning team consisted of Logan Nguyen, Max Smith, Ben Varner, Texas Maki, and Landon Pungarcher.
April 23, 2025: Washington, DC — In a bold show of unity, more than 100 organizations have issued a new statement urging Secretary of Labor Lori Chavez-DeRemer and the U.S. Congress to restore essential programs and staffing levels of the International Labor Affairs Bureau (ILAB), a frontline force in the global fight against child labor, forced labor, and human trafficking. ILAB also plays an important role in expanding global labor protections, with the aim of ensuring a level-playing field for American businesses at risk from overseas manufacturing that relies on exploited labor.
April 23, 2025: Chicago, IL – The 2025 LifeSmarts National Championship will be held in Chicago from April 24-27. Located at the Chicago Marriott Downtown, Magnificent Mile, the competition will feature 46 state teams vying for the national title. LifeSmarts, a program of the National Consumers League, continues to provide students with the tools and knowledge needed to navigate today’s complex, global marketplace.
The work of the National Consumers League is making a difference in people’s lives across the country. Meet some of the consumers touched by our programs.
Read about NCL’s impact
Paige, 55, a Nashville wife and mother of two, answered an employment ad for secret shoppers. Before sending payment to the scammers, she reached out to NCL.
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A grease fire flared up in Decklan’s kitchen. As his family scrambled and panicked, fearing that the whole house might erupt in flames, Decklan remained calm. He hurried over to the pantry, grabbed some baking soda, and dumped it on the fire quickly extinguishing the blaze.
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Cincinnati resident Charles, 45, lost his computer business — and health insurance— during a time of economic downturn. A diabetic, Charles was now unable to afford his medication. He stopped taking it which made him seriously ill and put his life at risk.
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Jeremy is a fast-food worker who has been employed at a number of Chipotle restaurants in New York City. When he was just 20 years old, he took part in an NCL research project that revealed that management practices within the fast food chain were putting workers—and food safety for customers—at risk.
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By Sally Greenberg, NCL Executive Director
While the COVID-19 pandemic has led to hardship for all Americans, it is clear that people of color have been disproportionately burdened. Across the health care continuum, addressing this disparity has become part of the broader conversation about the history of systemic racism and the underlying social determinants of health that negatively affect the mental, physical, and economic health of individuals and entire communities.
The pandemic has underscored persistent health disparities, and there is growing recognition that representation in research and clinical trials can have a profound impact on health outcomes. A lack of representation from racially and ethnically diverse groups in research and clinical trials have typically led to gaps in data, missing the opportunity to assess the full impact of various treatments and drugs across a range of populations. The collection and use of real-world research and data to inform the potential use, risks, and benefits of medical products and treatments can ultimately lead to better health outcomes, particularly for those who have been underrepresented in the past.
Existing efforts to improve inclusion
Efforts to expand diversity and representation in medical research are underway in Congress. Policymakers are encouraging the incorporation of Real World Evidence (RWE) in drug development through the recent Cures 2.0 draft legislation released by Reps. Diana Degette (D-CO-1) and Fred Upton (D-MI-6). While the status quo limits us from effectively reaching underserved populations, the proposed legislation would allow studies that include RWE for some drugs after they have been approved. At the heart of this issue is a growing appreciation that the same therapy can affect different populations in different ways, which is why Cures 2.0 supports collecting data that more accurately reflects the unique experiences and needs of patients across diverse populations.
Recognizing the potential for RWE in maternal health
The lack of representative research in the field of maternal health is undeniable, and its implications are staggering. The dismal state of maternal care in the United States reflects how our health care system has failed women of color, including by not adequately studying treatment options to prevent maternal morbidity and mortality. The need for RWE is clear when you consider the persistent disparities in health outcomes that plague minority communities.
Preterm birth and its disproportionate impact on women of color is a stark illustration of the need to make progress on representative research in maternal health. Preterm birth is the second-largest contributor to infant death in America today. Despite the tremendous physical, emotional, and financial toll that preterm birth continues to take on our country — disproportionately so on women and families of color — not enough therapeutic tools currently exist to prevent it.
Today, “17P,” the only FDA-approved treatment to help reduce the likelihood of spontaneous, recurrent preterm birth in the United States is at-risk of being withdrawn from the market in all its forms, including the branded product and five generic versions. Unfortunately there is conflicting evidence from two different clinical trials, one representative of a diverse U.S. population and another studied in a largely white population in Europe. It’s not a straightforward comparison. If 17P is withdrawn, the women most affected by preterm birth, predominantly women of color, would be left without an FDA-approved treatment option.
The FDA is considering the path forward, including additional data collection through leveraging RWE from past patient use. The success of the first (approval) trial for 17P in the impacted communities signals the importance of RWE. Continued access to 17P is, at its core, a matter of health equity. Black women must not yet again be left vulnerable to a system that historically has overlooked them.
