Regulations Can Save Lives, Like Ted’s – National Consumers League

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Sarah Aillon, NCL internWritten by National Consumers League Intern Sarah Aillon

The Trump administration is waging war against regulations. In January, President Trump announced in his State of the Union address that “in our drive to make Washington accountable, we have eliminated more regulations in our first year than any administration in history.” Since entering Office, the Trump administration rolled back many environmental, and economic regulations which secure the health, safety, and security of the American people. While the Trump Administration boastfully describes these rollbacks as progress, many public protection advocates have sounded their alarms.

Earlier this June, the Coalition for Sensible Safeguards and Georgetown Law organized a symposium which addressed the threat deregulation poses in the Trump era. Titled, The War on Regulation: Good for Corporations, Bad for the Public, the event featured a wide range of public protection advocates, including the mother of an accident victim, professors, and Senator Elizabeth Warren (D-Mass.) Their stories prove just how critical many regulations are for individual well-being and what happens when regulations do not monitor dangerous products.

Janet McGee, an advocate on the event’s second panel, and described the harrowing death of her 22-month-old son, Ted. In 2016, the toddler was in his room napping. When Janet went in to check on him, she found Ted under a dresser that had fallen on him. Ted was unresponsive and cold but had a faint heartbeat. McGee started CPR and then rushed him to the hospital. Tragically, the boy passed away four short hours after she first found him.

McGee’s story is not outstanding: every 17 minutes someone in the United States is injured by falling furniture, televisions or appliances. These furniture tip-overs kill a child every two weeks.

Voluntary safety standards in the American furniture industry perpetuate the high risk of furniture tip-overs. Voluntary safety standards threaten the consumer’s safety and security. A Consumer Reports investigation tested 24 dressers against the industry’s voluntary safety standards and found only six dressers met the industry’s standards. In response to their findings, Consumer Reports suggested raising the test weight for furniture tip-overs from 50 pounds to 60 pounds and to apply tests to dressers that are 30 inches high and higher. Anchoring dressers to walls with brackets and straps is an effective strategy to prevent the problem, but few consumers are aware of the need to secure their furniture from tip-overs.

Voluntary safety standards make enforcement of furniture safety difficult. Companies can pick and choose what standards they comply with. Voluntary safety standards allow product design to remain poor and increase the threat of injury and death.

The Ikea dresser responsible for the death of Janet McGee’s son did not meet safety standards. McGee’s Ikea dresser is not the only one from the company to fail their consumers. Over the course of 19 years, 8 children have died from Ikea dressers. As stated by McGee, the longstanding effects of furniture tip-over represent an industry-wide problem. However, with voluntary safety standards, little enforcement or change occurs.

Despite the danger many dressers on the market hold, little has been done to resolve the threat. Safety standards remain voluntary instead of mandatory. “Parents should worry about their children for many reasons, but furniture falling on them should not be one of them,” said McGee. Eventually, Ikea offered to take back 29 million chests and dressers in the Malm line, but very few consumers knew about the recall. Tens of millions of the Malm dressers are thought to still be in use and unsecured today.

McGee’s tragic, cautionary tale is just one example of why consumer regulations are necessary. President Trump’s focus on slashing regulations endanger everyday people, favoring big business at consumers’ expense. Regulatory safeguards enable people to live and work safely. “Strong government rules matter. We cannot, we must not accept a government that works only for a privileged few,” Warren said.

To learn more about furniture tip-over and Janet McGee’s story, click here.

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Sarah Aillon is a rising senior at Dickinson College pursuing dual degrees in Political Science and History. She is passionate about the National Consumers League’s work and is a child labor policy intern with them this summer.

National Consumers League statement on US opposition to breastfeeding at World Health Assembly – National Consumers League

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July 9, 2018

Media contact: National Consumers League – Carol McKay, carolm@nclnet.org, (412) 945-3242 or Taun Sterling, tauns@nclnet.org, (202) 207-2832

Washington, DC–The National Consumers League (NCL), the nation’s pioneering consumer organization, is expressing its disappointment at reports of actions taken by the U.S. delegation to the United Nations’ World Health Assembly opposing a resolution meant to promote breastfeeding worldwide. According to reporting by the New York Times and others, the U.S. delegation demanded that language encouraging governments to “protect, promote and support breastfeeding” be removed from a resolution – introduced by Ecuador — that had been expected to pass without issue.

The resolution, based on established research about the significant health advantages of breastfeeding to both mother and baby,  encouraged countries to promote breastfeeding and “strive to limit the inaccurate or misleading marketing of breast milk substitutes.”

“The United States delegation, embracing the interests of infant formula manufacturers, upended the deliberations,” reported The Times.

The National Consumers League (NCL) has long advocated for the promotion of breastfeeding for health and economic reasons, as well as for policies that support women’s ability to breastfeed, including in public places.

A study from the journal Pediatrics found that breastfeeding could save 900 lives a year and billions of dollars if 90 percent of women breast-fed their babies for the first six months of life. Research has determined that breastfeeding could prevent hundreds of deaths and many more illnesses such as asthma, diabetes, ear infections, stomach viruses, or even childhood leukemia.

The following statement is attributable to Sally Greenberg, NCL Executive Director:

Breastfeeding has long been hailed as the best source of nourishment for infants, providing the perfect mix of nutrition in an easily digestible form and lowering the risk of certain syndromes, diseases, and allergies.

That the United States delegation to the World Health Assembly would be compromised by the interests of infant formula manufacturers is a disgrace – and going so far as to threaten Ecuador with retaliation for introducing this fundamental resolution is an utter embarrassment.

It is troubling that corporate or other interests might be undermining America’s policy stances on basic health issues such as this. We are disappointed at the U.S. delegation’s void in leadership but pleased that the World Health Organization’s long-standing policy of encouraging breastfeeding prevailed.

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About the National Consumers League

The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit https://nclnet.org.

Endometriosis: In need of attention! – National Consumers League

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Zoe PharoZoe Pharo is a rising sophomore at Carleton College in Northfield, MN and is excited to be a health policy intern with the National Consumers League this summer.

Endometriosis is estimated to affect close to 200 million women worldwide, but we often hear very little about its prevalence.

 

On behalf of the National Consumers League, I attended a June 19 panel on endometriosis, hosted by the Society for Women’s Health Research. Panelists included Linda G. Griffiths, PhD, Professor of Biological and Mechanical Engineering at the Massachusetts Institute of Technology; Stacey Missmer, ScD, Scientific Director of the Boston Center for Endometriosis; and Robert N. Taylor, MD, PhD, Professor of Obstetrics and Gynecology at the University of Utah. The panel was moderated by the Society for Women’s Health Research’s President and CEO, Amy Miller, PhD.

What is endometriosis? 

Endometriosis is a condition where tissue that is typically only located inside the uterus is found elsewhere in the body. While it is estimated that close to 200 million women worldwide will experience endometriosis, we often hear little about its prevalence. Even as awareness of endometriosis increases—thanks to Lena Dunham and other celebrities sharing their struggles with the disease—numerous challenges still remain, including the following:

  • Many women face delays in diagnosis or misdiagnosis;
  • Funding for research has been slashed and continues to decrease under the Trump Administration;
  • Subtypes of the disease have yet to be identified;
  • Data on the prevalence of endometriosis does not exist; and
  • There is no standardized way to measure the amount of pain felt by women with endometriosis, often resulting in upsetting and discouraging interactions when women try to talk to their clinician, family members, colleagues, spouse, or others about their experiences.

What are the symptoms of endometriosis? 

Common symptoms of endometriosis include infertility, back and pelvic pain, digestive problems, painful sex, and painful menstrual cramps. The most visible symptoms of endometriosis are the lesions that often accompany the disease. However, there is no conclusive research on the relationship between lesions and pain or infertility. It is important to note that many women with endometriosis never present with any outwardly visible symptoms. Further, medical professionals do not have a standard way to measure pain. As Dr. Robert N. Taylor said, “Pain is a highly complex behavior” and is therefore hard to study and model.

Additionally, a patient diagnosed with endometriosis may present with comorbidities. Endometriosis has been found to lead to an increased risk of cancer, cardiovascular disease, and other autoimmune diseases.

Why the delay in diagnosis?

Diagnosis of endometriosis is delayed an average of six to seven years, partly because, as Dr. Taylor said, “American medicine has lagged behind in the teaching of sexuality.” Healthcare providers and women’s health advocates need to create spaces where women are comfortable discussing their sexual health and any painful symptoms that may point towards a diagnosis of endometriosis.

Even when women do discuss their symptoms, delayed diagnosis can be due to symptoms that overlap with other gynecologic and gastroenterological processes. For example, a common misdiagnosis is IBS. In addition, for many years, the only way to definitively diagnose endometriosis was by operating, using laparoscopy or excision. Surgical diagnoses come with risks, so we are beginning to move towards alternative methods that do not rely on such invasive procedures. However, even newer medical treatments, such as suppressing hormone production, can have negative consequences in young women.   

What can policymakers, healthcare providers, and advocates do?

Policymakers can appropriate additional funding for endometriosis research. First and foremost, endometriosis is an economic problem, representing an annual $69.4 billion economic burden in the United States. Despite this burden, funding for endometriosis is shrinking, at the same time that endometriosis is becoming more prevalent in the population.  

As Dr. Linda Griffiths pointed out, research on endometriosis is not what is funding many scientists’ careers. Dr. Griffiths described her research on endometriosis as a “hobby,” and advocated for more basic research on the biology of endometriosis and on potential subtypes of the disease. Future research should also look at selective groups that have yet to be studied. In addition, it is important to reconsider how to effectively judge pain. Currently there is no standard algorithm. This is troubling to Dr. Griffiths, as she recounted a time when she vomited from the intensity of her own endometriosis pain.  

Dr. Griffiths also recommended routine and accurate collection of data, which currently does not exist for endometriosis. We need to consistently measure the prevalence of endometriosis in various populations as well as the efficacy of potential treatments.  

Dr. Stacey Missmer recommended the implementation of policies to enable women to report their symptoms and be taken seriously when they do so. Electronic medical records might provide a way to alter clinician-patient interactions. Dr. Missmer said she envisions an electronic drop-down option for immediate entry, perhaps asking patients, “Are you experiencing pelvic pain?”

Finally, we need to talk openly about the physical and psychological effects of endometriosis. NCL is working closely with leading organizations in the women’s health space to consider the most effective ways to bring down barriers to better outcomes in women’s reproductive health.