A Trusted Source for Reliable Health Information

For more than a century, the National Consumers League (NCL) has been a vigorous advocate for consumers, playing a pivotal role in protecting health and safety, by providing vital and reliable information on medical and food products so that individuals and families can make informed decisions about matters that affect their well-being.

Since being chartered in 1899, the organization has worked to create and strengthen protections for consumers. These critical protections were led initially by the work of its first general secretary, Florence Kelley, who helped spread the word about the importance of typhoid vaccines to mitigate a disease outbreak at the end of the 19th century and helped lead the League’s efforts to promote the Pure Food and Drug Act of 1906, which laid the foundation for the Food and Drug Administration (FDA).

Indeed, the work and mission of NCL shares much with the FDA, an agency that embraces a basic responsibility to provide the public with accurate, science-based information so that Americans can make well-informed decisions about their health. We’ve seen great success in this area, thanks in part to the work done by NCL. Nevertheless, we still face great challenges, and I am confident that NCL will play a very important role in addressing these as well.

Our nation has enacted important laws to help protect consumers, and we have marshaled extraordinary progress in science and technology in the development of new treatments and cures for diseases. Despite these and other advances that enable us to improve our health, we are today witnessing a troubling new development in, and threat to, public health. Notably, we are experiencing a worrisome decline in our nation’s life expectancy that is in part linked to an increasing prevalence and cumulative impact of a number of chronic diseases — heart, vascular, metabolic (such as obesity and diabetes), and lung and kidney disease, and to troubling rates of overdoses, suicides, and gun violence.

Just as regrettable is the growing problem of misinformation about public health, science, and medicine. A stream of misinformation and often unfounded opinions, most often spread via the Internet and social media, is eroding the public’s trust in science and government agencies, such as the FDA, making it increasingly difficult for the public to verify facts and advice from these trusted sources.

While not a new problem in our nation’s history, the digitization of our culture and the rapid growth of social media have exacerbated the pervasiveness and impact of the problem. This is an area where NCL’s powerful voice and unimpeachable credibility can have an enormous impact. Neither the FDA, nor the entire federal government can combat the spread of misinformation on its own. It is going to require a concerted non-governmental response. Few organizations are better positioned to succeed at this task than the National Consumers League.

It wouldn’t be the first time NCL rose to the occasion. During the COVID-19 public health emergency, NCL was an essential voice – helping Americans better understand the virus, its variants, and how to protect themselves from infection. The organization testified before the FDA and Centers for Disease Control and Prevention panels on vaccine development and safety and advocated for limits on social media misinformation during that crisis.

Similarly, NCL has provided enormous public benefit through its work to help consumers understand food labeling, to hold companies accountable for the claims they make regarding food and health care products, and with programs such as Script Your Future that help raise awareness of the importance of medication adherence among patients, particularly those with chronic health challenges.

There is an old saying that a lie can get halfway around the world before the truth can get out of bed. Given the speed and reach of social media today, that analogy can be applied to misinformation, which is disseminated far too quickly to be adequately countered with trustworthy facts. However, we don’t have the luxury to surrender. The lives and well-being of too many people depend on our ability to provide the public with reliable information grounded in science.

I am confident in our ability to overcome this latest challenge, thanks in large part to allies like the National Consumers League with its long track record of empowering generations of Americans to make well-informed decisions to secure their health and their futures. I look forward to NCL’s continued activism, engagement, and leadership.

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Robert M. Califf, M.D. is Commissioner of the Food and Drug Administration.

NCL and FDA: Allies in Action

Sixteen years ago, the Food and Drug Administration (FDA) invested in the NCL’s launch of its Script Your Future initiative. It turned out to be an extremely wise use of public resources. The program is still making a difference in people’s health and lives today, providing education on the importance of medication adherence, building confidence in vaccines, offering information on alternatives to opioids, and raising awareness of drug safety and how to engage in safe drug disposal. Because of Script Your Future, more patients are knowledgeable about their medication options, including the growing field of biosimilars.

The success of this program is emblematic of the long-standing, productive relationship between the FDA and NCL. During my nearly four decades with the agency, I have greatly appreciated a partnership that has benefited all who rely on the safety and efficacy of medicines and healthy foods. I began my relationship with NCL when Linda Golodner was the organization’s CEO and have continued our collaboration with Sally Greenberg and her team.

NCL’s history as an advocate for public health is linked to the very creation of the FDA. Under Florence Kelley’s historic leadership of the League, the organization played a critical role, during President Theodore Roosevelt’s Administration, in the passage of the Pure Food and Drug Act, which, for the first time, created legal protections declaring that consumers had the right to safe products. The bill also created the precursor for what would become the FDA.

Then, just over a decade later, NCL defied not only the conventional wisdom of the time, but also staunch opposition from powerful political forces to get the Sheppard-Towner Maternity and Infancy Protection Act enacted into law. Also known as the “Maternity Act,” Sheppard-Towner became the first-ever federally funded social welfare program, providing states with federal matching funds for health clinics for pregnant women, as well as mothers and their children, visiting nurses to help care for pregnant and new mothers, midwife training, and dissemination of health and nutrition information.

When I began working with NCL early in my tenure at the FDA, it was already an organization that had established enormous credibility as a valuable ally for patients and consumers. What I found firsthand is that NCL is an honest, reliable broker on a wide range of issues and has an unwavering commitment to the well-being of consumers and workers. In our work at the FDA, NCL has been a valuable ally that has effectively advanced responsible policies on food and medication safety.

Today, NCL is continuing to build on its 125- year volume of accomplishments, focusing on the important challenges of today. NCL is providing a necessary voice on issues such as prescription drug access and affordability, stopping the spread of counterfeit medications, improving food and beverage labeling, and promoting nutrition and healthy lifestyles.

The science behind medical and food innovation is constantly and rapidly evolving, and as it does, so will the issues affecting population health and welfare. So, in addition to congratulating NCL on its 125th anniversary, I want to emphasize how important it is that we continue to have NCL shaping a future defined by health, safety, and access to the best care medical science continues to provide.

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Before her retirement earlier this year, Dr. Janet Woodcock held numerous leadership positions at the Food and Drug Administration, including Acting Commissioner, Principal Deputy Commissioner, and Director of the Center for Drug Evaluation and Research. In 2017, NCL recognized Dr. Woodcock with the Florence Kelley Consumer Leadership Award. 

Pioneering Access to Affordable Healthcare

The drive to achieve accessible, affordable, high-quality healthcare for every man, woman, and child in the United States has been a long one, and it has been a central pillar of the National Consumers League’s (NCL’s) mission and history. Having served as Secretary of Health and Human Services during the creation and implementation of the Affordable Care Act (ACA), I have a great awareness and appreciation for the role NCL has played in bringing health security to more Americans and preventing those protections from being diminished or taken away by opponents of progress.

As I said, it’s been a long battle and one that is far from complete. You can go back to the Franklin D. Roosevelt Administration to witness NCL’s impact on health reform. Josephine Roche, a former president of NCL, was by President Roosevelt’s side writing the first-ever universal healthcare bill to be introduced in Congress. Components of that legislation became the groundwork for the creation of Medicare and Medicaid. 

In building a healthier nation, NCL also played a key role in the passage of the Sheppard– Towner Maternity and Infancy Protection Act, the first venture of the federal government into Social Security legislation and the first major law that came to exist after the full enfranchisement of women. Before its passage, most of the expansion in public health programs occurred at the state and local levels. The act provided support for women and their babies through pregnancy and childbirth and resulted in a decrease in infant mortality rates. It was repealed after lobbying by the American Medical Association, which argued it was “socialized medicine” in 1929, but when the Social Security Act was passed in 1935, it included many of the same provisions.

Since that time, NCL’s name has been there whenever opportunities occur to improve the health and well-being of consumers and working Americans or when efforts to roll back hard-won healthcare benefits need to be fiercely opposed. The Department of Health and Human Services has one of the most far-reaching portfolios of any cabinet department, and, as Secretary, I valued NCL’s ability to weigh in on so many of those issues, be they Medicare reform, prescription drug affordability, or food safety.

What I appreciate about NCL’s work in this space is that its mission involves not just policy advocacy, but also practical guidance for consumers trying to navigate the complexities of our healthcare system. The organization has been an invaluable resource in helping people better understand their healthcare coverage options; protect themselves against fraud; realize the importance of being up-to- date on vaccines; and, through the excellent Script Your Future program, practice better medication adherence.

The need for NCL in today’s healthcare sphere is more important than ever. Healthcare is, and always has been, a politically charged, volatile issue. As we saw during the battles to enact the ACA and prevent its repeal, and again during the COVID-19 pandemic and the effort to get people vaccinated, there is no shortage of misinformation designed to thwart public health initiatives. We need NCL, with its impeccable credibility, to combat the misinformation clutter and to cut through the noise with reliable, evidence-supported messaging that the American people can trust.

NCL’s voice is vital, as well, in the continuing battle to make healthcare more affordable and accessible. While the ACA has been an enormous success in reducing the number of uninsured persons in this country, patients and consumers are still dealing with industry machinations that make it more difficult to get the treatments they need and make out-of- pocket costs higher than they should be. NCL continues to be an effective advocate so that patients and their healthcare providers, rather than insurers, can determine the best course of treatment together.

Yes, the road to universal healthcare is a long one, but we wouldn’t be as far in this journey as we have come without the work of the National Consumers League.

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Kathleen Sebelius is the CEO of Sebelius Resources, LLC, a strategic advisory firm, and was Secretary of Health and Human Services under President Barack Obama, and was a 2023 recipient of the Trumpeter Award. 

Saving Kids’ Lives Through Safer Vehicles

Virtually every safety feature in automobiles, even those we take for granted, like seat belts and airbags, became standard equipment only after overcoming intense resistance. The technologies that have made cars much safer for both passengers and pedestrians have come about because of the commitment, determination, and resourcefulness of those who refuse to surrender in the fight for positive change.

That’s why I am so grateful for the partnership of Sally Greenberg and the National Consumers League (NCL). The work they have done and continue to do is saving countless lives.

In the 1980s, healthcare professionals were publishing papers on the number of people, predominantly small children, who were being killed or injured by cars backing out of driveways or parking spots. A 1993 report from the National Highway Traffic Safety Administration (NHTSA) found that as many as 200 pedestrians, mostly children, were being killed each year by backing out collisions. At least 50 children every week were being backed over by vehicles.

My organization, Kids and Car Safety, compiled data on the problem and concluded that the only solution would be to mandate a rear visibility standard—cameras that would allow the driver to see what was behind the car, particularly a small child who could not be seen through the rearview mirror or rear window. The regulators were not acting, so we began working with Congress on legislation to require a rear visibility standard allowing drivers to see behind them when backing up. After all, you cannot avoid hitting something or someone you cannot see.

That’s when I teamed up with Sally Greenberg, then with Consumers Union. We began a battle that would take years but was so very necessary to prevent more families from suffering avoidable tragedies. We matched our research and our firsthand witness testimonies against the arguments that rear backup cameras would add too much to the cost of cars and that drivers wouldn’t use them. We argued that they shouldn’t only be offered as an optional feature in luxury cars.

Sally and Consumers Union, along with Kids and Car Safety and NCL, tirelessly insisted that safety could not be offered only to those who could afford it.

Finally, in 2014, a new rule was issued and took effect in 2018, mandating that all vehicles sold or leased in the United States, no matter where they were manufactured, be equipped with a rear backup camera. Today, they are thought to be as essential as seat belts, airbags, side impact protection, and electronic stability control—features that no vehicle should ever be without. And it happened because of advocates like Sally Greenberg and others who simply wouldn’t back down to the powerful, well-financed opposition.

There is more to be done to make cars safer for drivers and their families. On average, about 40 children die annually in hot cars. Often, these are infants and toddlers in rear- facing car seats, and the driver, looking in the rearview mirror, can’t tell if the seat is occupied or not.

We’re pleased to have NCL’s powerful voice engaged in yet another effort to use effective technologies to save lives. Occupant detection systems can distinguish between living beings and inanimate objects in the vehicle and can alert the driver that a child is unattended in the vehicle. This system will save lives, as NCL has compellingly pointed out. There is resistance to making occupant detection systems a mandatory feature in new cars. There always is. Yet, we were successful in adding a lifesaving traffic safety provision designed to prevent hot car fatalities, in the Infrastructure Investment and Jobs Act (IIJA).

Kids and Car Safety and NCL have a solid track record of collaborating on these issues. When lives, health, and safety are at stake, I wouldn’t bet against us.

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Janette Fennell is the Founder and President of Kids and Car Safety, a national nonprofit organization dedicated to preventing injury and death to children and animals in and around motor vehicles.

Flying High on Consumer Protections: Transforming Air Travel

Even as the widespread availability of air travel has become one of the hallmarks of modern civilization, frequent negative passenger experiences have become one of modernity’s most familiar headaches. From impromptu conversations I’ve had while waiting for a flight, to formal complaints submitted to the Department of Transportation, where I serve as Secretary, I have heard countless stories of frustrating experiences that range from irritation or inconvenience to serious harm and profound violations of passenger rights. These stories, coupled with a belief that air travel can and should be a consistently better experience, have propelled us during this Biden-Harris Administration to commit ourselves to the largest expansion of passenger protections and airline enforcement in the Department’s history.

The strides we have made thus far, and they are substantial, are a credit to the civil servants of our Department and the leadership of our Administration. They also reflect tireless advocacy and important insights from pro- consumer organizations like the National Consumers League (NCL).

NCL has been protecting the interests of consumers for 125 years, and in recent years, the organization has been a tremendously important voice in the effort to ensure airlines treat their customers fairly. Recently, these contributions have included the service of NCL’s John Breyault as the consumer representative on the Department’s Aviation Consumer Protection Advisory Committee.

In recent years, we have proudly delivered a number of important victories for consumers:

● Since President Biden took office, we have increased oversight of the airline industry and have been holding airlines accountable when they fail consumers. This has resulted in securing nearly $4 billion in refunds and reimbursements owed to airline passengers.

● The Biden-Harris Administration issued a final rule, which was then fortified by the Federal Aviation Administration (FAA) Reauthorization Act, to make it easy for consumers to obtain cash refunds when owed. If an airline cancels or significantly changes a flight, passengers are now entitled to an automatic refund within seven business days for credit card purchases if the passenger is not offered or does not accept alternative transportation or travel credit. We have made good on the principle that consumers should not have to navigate a patchwork of cumbersome processes to request and receive a refund. No more searching through airline websites to figure out how to make the request or being misled to accept a travel credit when you are entitled to a full refund.

● Another final rule we issued protects consumers against costly surprise airline junk fees. It requires airlines and ticket agents to tell consumers up front about the fees they charge for transporting bags and canceling or changing a reservation. I did not expect the concept of providing customers with the information they need to make an informed decision to be controversial, but the airline industry has decided to challenge this rule in court rather than make the necessary disclosures to their customers. We will continue to defend in court a rule that we view as commonsensical and that is expected to save consumers more than $500 million every year.

● We have also proposed a new rule that would ban airlines from charging junk fees to seat families together on a flight. Today, many airlines still don’t guarantee family seating, which means parents face concerns that they may have to pay extra just to be seated with their young child. Flying with children is already complicated enough without that added uncertainty, so we are acting to address this.

We are proud of our efforts to date, and the bipartisan FAA Reauthorization Act signed by President Biden earlier this year builds further on our work to improve the travel experience for airline passengers. But much work remains to be done. Good policy, and strong advocacy for consumers, will matter more than ever in the years ahead.

I want to congratulate NCL on its 125th anniversary. I look forward to continuing to work alongside NCL towards our shared goal of making aspects of everyday life, like air travel, more affordable, more manageable, and less stressful for American consumers.

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Pete Buttigieg is the Secretary of the U.S. Department of Transportation.

Protecting Consumers From Junk Fees and Unfair Pricing

Fighting to lower costs for Amer-icans is at the heart of President Biden’s economic agenda—just as it is for the National Consumers League (NCL). The last few years have been especially challenging for a lot of families, as the pandem-ic-era disruptions and Putin’s war have driven up costs in every part of a household budget, from rent to groceries to childcare.

Since taking office, President Biden has called on big corporations to pass along savings to consumers; secured historic legislation lowering the costs of prescription drugs, childcare, utility bills, and health insurance; directed his Cabinet to use every administrative tool to lower costs; and gone after hidden junk fees in nearly every area of a family’s budget—from banking overdraft fees and credit card late fees to attending live events. 

These junk fees are everywhere, whether in the form of mysterious “resort fees” that are tacked onto bills for ordinary hotel stays or “processing fees” attached to concert tickets at the last minute. While hidden fees might not matter to the wealthiest Americans, they add up for hard-working Americans. Research shows that consumers pay upwards of 20% more when faced with junk fees than if they had access to the all-in price up front. It is hard for honest companies that show the all-in price up front to compete fairly when competitors post prices without the hidden fees that consumers will ultimately have to pay.

This is why the President launched a Strike Force on Unfair Pricing and has charged his Competition Council with eliminating junk fees across industries. The Administration has implemented rules against junk fees related to air travel, cable TV, broadband, and financial services—like banking overdraft fees. This is putting hundreds of dollars back into the pockets of American families.

The Administration’s actions to cut credit card late fees will save the estimated 45 million Americans who regularly incur these fees an average of $220 per year. Our actions to ban family seating fees could save a family of four $200 on a round-trip ticket. Another proposed action would require businesses—including online ticket sellers, apartment rental companies, hotels, and car rentals—to provide consumers with the all-in price up front and to disclose any mandatory fees, what they are for, and whether they are refundable. The Administration’s actions are projected to save Americans more than $20 billion annually—and we are just getting started.

So much of the progress we have made to crack down on junk fees would not be possible without the advocacy and research of organizations like the NCL, which has a distinguished 125-year history of advocating on behalf of American consumers.

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Lael Brainard is an economist who serves as the Director of the National Economic Council.

The Push to Advance Consumer Product Safety

I wholeheartedly subscribe to the philosophy espoused by Dr. Martin Luther King, Jr. when he said that “human progress is neither automatic nor inevitable” and that it is dependent upon “the tireless exertions and passionate concern of dedicated individuals.”

We do, in fact, live in a safer world today because of the tireless exertions and unyielding passion of Sally Greenberg and her team at the National Consumers League (NCL) to make it so. Even if achieving a lifesaving product safety improvement requires years of determined effort to overcome the fierce opposition of powerful interests, we have seen that NCL does not stop working until progress is achieved.

I first met Sally back in the late 1990s when I was the executive director of the Consumer Product Safety Commission (CPSC), and Sally had just come to Washington, DC, to work for Consumers Union, which is now Consumer Reports. People thought with our shared interest in consumer protection, we would get along well. It was the beginning of a beautiful friendship and a productive one.

For the past 15 years, we have been engaged in an effort to make table saws less dangerous. This is an issue of considerable and devastating magnitude. Each year, there are approximately 30,000 table saw accidents that require medical treatment, including about 4,000 amputations.

Dr. Steve Gass, an attorney, physicist, and amateur woodworker, came up with an idea to fix this. He developed a sensor and a braking mechanism that would stop a saw blade immediately upon contact with skin, rendering what would have been a severe laceration into the equivalent of a paper cut. At first, Steve and his partners tried to get the table saw industry to license his new technology and incorporate safety into the saws they sell to the public. But the industry wasn’t interested in spending money to protect their own customers. So, Steve and his partners founded a table saw company called SawStop. These saws have prevented tens of thousands of injuries in the 20 years they have been on the market.

Dr. Gass and his partners believed that safety technology should become the standard for the industry, but larger table saw manufacturers fought back and were successful in keeping federal action from occurring. Sally Greenberg, an amateur woodworker herself, heard about this on National Public Radio and got involved. It has been a difference maker.

NCL has been a key player in a decades-long campaign that involved, in part, bringing victims of table saw accidents face-to-face with members of Congress and CPSC commissioners. It’s one thing to hear about a problem. It’s quite another to meet a firefighter who could no longer hold a fire hose and couldn’t do the job he loved, a musician who could no longer play guitar and became suicidal, or a high school student who lost fingers in shop class.

It has been a long battle against an entrenched and powerful industry, but we’re now in the final stages of federal rulemaking that will not just mitigate the risk of table saw accidents, but virtually eliminate that risk. This would not have happened if not for Sally Greenberg and NCL.

But that is what NCL has done for 125 years. It’s thanks to this organization’s work, for example, that rearview backup cameras are now standard in cars. When the technology was developed, it was only available as an option for luxury vehicles. It took NCL and other advocates years of determined advocacy, pointing out that the lack of these cameras was leading to hundreds of deaths—mostly of small children—and thousands of injuries each year. Today, thanks to this work, cars are safer, and more children are alive.

Referring again to Dr. King’s words, we can never take progress for granted or assume it will occur, not without the determination of those who will never give up, no matter how fierce the opposition or how difficult the fight. That is Sally Greenberg and her team, and that is the history of the National Consumers League.

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Pamela Gilbert is a Partner in the law firm of Cuneo Gilbert & LaDuca LLP and previously served as Executive Director of the Consumer Product Safety Commission, Consumer Program Director at the U.S. Public Interest Research Group, and Executive Director at Public Citizen’s Congress Watch. 

Leveling the Playing Field: Advocating for Fair and Competitive Markets

When the marketplace works as it should, it’s a wonderful thing for consumers. Free and fair competition generates value in the form of higher quality and affordable pricing. Consumers have the power of their pocketbooks to reward those companies that offer a square deal and force others to do better. It’s a system that works most of the time.

But sometimes markets run astray of these fundamental principles. They need a nudge, or something a little more forceful, to get back on track. This is where the National Consumers League (NCL) has been so valuable for so long, sounding the alarm when corporate malefactors distort our markets, and keeping the pressure on until solutions are put in place.

After having had the privilege of chairing the Federal Trade Commission (FTC), becoming affiliated with NCL seemed a natural step because of the similarities of the two organizations’ missions. The FTC is all about keeping the marketplace free of distortions such as monopolization and deceptive advertising that put consumers at an unfair disadvantage. And this is what NCL has been doing throughout its century-plus history, insisting upon corporate accountability, the preservation of competitive marketplaces, and strong and sensible regulations to protect consumers.

In recent years, we’ve seen NCL’s influential voice and determined actions come into play where they are needed most. For example:

● NCL has been a leading force in protecting consumers who buy tickets for live events, shining a spotlight on Live Nation- Ticketmaster’s monopolization of the marketplace and the excessive costs that lack of competition is imposing upon ticket buyers. NCL has been on the front lines of this fight, encouraging both legislation and antitrust action by the federal government.

● Lack of competition in the healthcare industry has been a long-standing problem and one that NCL continues to address. Not only have persistent hospital consolidations led to higher costs for patients, but the control of the prescription drug marketplace by three giant pharmacy benefit managers is pushing consumers to buy higher-priced medicines and denying them access to cheaper generics and biosimilars. NCL was a critical player in encouraging the FTC to open an investigation into pharmacy benefit managers practices.

● When this nation experienced an infant formula crisis from both contamination and shortage, NCL persistently cited the fact that only three manufacturers control 98% of the market—and that this problem could occur again if we don’t incentivize more companies to compete.

● And it was NCL that raised the alarm that more than 90% of the nation’s largest airports are dominated by just one or two airlines, leading Americans to pay higher travel costs than consumers in other countries. Also, NCL is out front urging the Department of Transportation to force airlines to be clearer and less deceptive about their add-on fees so that consumers can make apples-to-apples price comparisons.

These are just a few examples of the essential work that NCL is performing to complement the efforts of the FTC and other federal and state agencies and, in many cases, to draw the regulators’ attention to anticompetitive situations that warrant action.

As I mentioned in my board chair letter at the beginning of this book, NCL has done this with a staff and resources immensely smaller than the industries it’s working to hold accountable. NCL punches far above its weight. Impressive seems like an understatement in describing not only the great work NCL is doing on behalf of Americans today, but also the great work it has been doing over the past 125 years. NCL is truly a vigilant guardian, never leaving its post in making sure that marketplaces work as they should for generations of consumers.

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Jon Leibowitz is former Chairman of the Federal Trade Commission (FTC) and President of the National Consumers League Board of Directors.