Consumer warning: is your DNA data at risk? 23andMe on the brink of bankruptcy
Media Contact: Lisa McDonald, Vice President of Communications, 202-207-2829
Washington, DC – The National Consumers League (NCL) is issuing an urgent warning to consumers regarding the recent bankruptcy filing by 23andMe, the popular genetic information company. While 23andMe claims that consumer data will be protected during the bankruptcy process, there are significant concerns about the future of your personal genetic data and health information.
“It remains uncertain whether consumer protections and agreements will be upheld within the context of the bankruptcy proceedings,” said NCL VP of Public Policy Telecommunications and Fraud John Breyault. “Additionally, there is concern that DNA samples may be classified as assets, raising questions about who may ultimately gain access to sensitive and private health information.
23andMe’s privacy statement reads: “If we are involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets, your Personal Information may be accessed, sold or transferred as part of that transaction.” The bottom line is that all consumers have the right to delete their genetic information from 23andMe, and it is crucial to do so before any potential changes in ownership or privacy policies occur. NCL urges consumers to take action to protect their data
The California Attorney General has issued a consumer alert urging individuals to exercise their rights under state privacy laws, including the right to delete their data and request the destruction of any biological samples held by the company. Even mainstream media outlets like The Washington Post are urging consumers to exercise their rights, publishing a story this morning entitled “Delete your DNA from 23andMe right now.”
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About the National Consumers League (NCL)
The National Consumers League, founded in 1899, is America’s pioneer consumer organization. Our mission is to protect and promote social and economic justice for consumers and workers in the United States and abroad. For more information, visit www.nclnet.org.
